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On August 23, 2026, Paige and Marnie are running a half marathon for the Ontario Prader-Willi Syndrome Association, a cause that hits very close to home for our family.
When we told our uncle Jon we were training for a half marathon, he didn't skip a beat — "you're doing it for me, right?" Obviously, Jon. Obviously.
We're running for Jon. Our favourite son, brother, uncle, cousin, lifeguard... and honestly just one of our favourite people. Jon has Prader-Willi syndrome (PWS), a rare genetic condition that affects appetite, growth, learning, behaviour, and overall health. It comes with real challenges — for him and for our whole family — and it's shaped so much of who we all are.
The Ontario Prader-Willi Syndrome Association has been a lifeline for families like ours. They provide education, advocacy, community connections, and programs that genuinely make a difference for people living with PWS across Ontario. We want to help them do more of that.
So we're going to run 21.1 kilometres, probably complain a little (a lot), and think of Jon every single step of the way. Every donation and any amount helps turn this race into something real for him and for so many others like him.
Thank you, from the bottom of our hearts <3
Co-organizers2
Marnie O’Brien
Organizer
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Ontario Prader-Willi Syndrome Association
Beneficiary
Paige Babb
Co-organizer

