Joel Strong

Fighting this fight together Joel's journey began in September 2018 when his mom found a hard lump underneath his rib cage one night. The days that followed that night were a blur of emotions, medical terms and just overall devastation. Joel was diagnosed with neuroblastoma at 18 months old. He had a softball size tumor on his right adrenal gland and was stage L1, which meant that the cancer was localized and only in one spot.  After his diagnosis he started chemo to shrink the tumor so it would be easier to remove. He did 4 rounds of chemo that lasted about 4 months. When chemo ended in December 2018 they scheduled him for surgery to remove the tumor in January 2019. We were told the surgery would take about 10 hours and they would remove his adrenal gland and the tumor and possibly his kidney as well. Their amazing surgeon was able to complete Jojo's surgery in half the time and she was able to remove the tumor without taking any of his organs. During this entire process Joel was so strong! Even though he was the one going through all of the horrible treatments he was the one that kept his family and everyone around him smiling. Don't get it wrong, he had his days but for the most part his joy for life made them all stronger. January and February 2019 were full of appointments and checkups. Joel had his port removed in February 2019 and he also ran the bell to say he was cancer free. So you can imagine that they didn't think that they would be right back where they started almost a year later. The chances of relapse for Joel were significantly low so they were all devastated and shocked when his scan on December 4th 2019 showed some areas of concern. After his PET scan results came back on December 10th they scheduled an appointment to meet with the surgeon to talk about surgery to remove the two tumors. Surgery took place on December 26th, 2019. Surgery was going to be about 5 hours, so when they called to tell them surgery went well and was over 2 hours earlier you can imagine that they were excited and relived. Only to find out from the surgeon that the reason surgery was shorter this time around was not a positive one. Joel’s tumor had almost doubled in size in a little over 2 weeks. So the surgeon and oncologist decided that it would be best to just do a biopsy and then start chemo right away to shrink the tumor before trying to remove it. They can’t even put into words what they felt at that moment.  This is not something any child should have to endure and it is definitely not something that you would ever think your child would have to endure. So here they are going into 2020 with a plan to be cancer free in the New Year. Joel will receive 2 rounds of chemo which will be 5 days of inpatient chemo starting December 31, 2019 and the next round will begin on January 21st.  Around February 11th or so he will then get another scan to see what the tumor looks like and that will determine what happens next. More chemo or surgery? Just like last time they are completely overwhelmed with the amount of love, support and prayers coming from so many different places. Team Joel is strong and they really appreciate everyone that is standing behind them in this fight for this amazingly strong little guy!   Thank you! If you want to follow Jojo's journey here's a link to his Facebook page: https://www.facebook.com/groups/244462529753168/

Donations

  • R v 
    • $30 
    • 10 hrs
  • Anonymous 
    • $100 
    • 20 hrs
  • Gerald and Charlotte Estes 
    • $100 
    • 3 d
  • Rutu Dushyant Vachhani 
    • $51 
    • 10 d
  • Arianne Johnson 
    • $30 
    • 11 d
See all

Fundraising team: Fundraising team (3)

Alicia Nicole Kinsey 
Organizer
Crawfordville, FL
Kimberly Traverse 
Beneficiary
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