Asking for help is never easy!

I am not the type of person who has ever or would ever do this, but I am at a point where I need to ask for help! Three years ago (this month) I found out that I had been misdiagnosed for over 10 years with a false diagnoses of a very serious disease. In May of 2012, I met a doctor who was able to help me find out what I really have going on. I was diagnosed with Narcolepsy with Cataplexy. Most people (including people in the medical field) do not understand this disease and actually think it's a joke. Well I can tell you that this disease is the farthest thing from "funny."
Narcolepsy is a neurological autoimmune disease. My body wants to sleep most of the day and refuses to sleep at night. A person without this condition can get a full 8 hours of sleep in one siting whereas for me, I only get 15 to 20 minutes at a time, if I’m lucky. If I wanted a full restful night of sleep it would take me over 24 hours to gain that, possibly. Between having extremely graphic and scary dreams to being paralyzed it is not an easy task to complete. When I say paralyzed I am referring to the cataplexy. Cataplexy is where I go into totally paralysis. I lose all forms of muscle tone. It can happen in one area of my body (in forms such as knee buckling, head nods or a creepy smile) or it can make me collapse completely losing my entire body and landing on the floor or into whatever is close to me. Cataplexy is brought on by emotions, stress, anxiety, laughter, fear and a lot more. This is where the problem begins, due to this happening I have to limit my driving (we all understand how dangerous  that can be for me and others) which results in me having become not able to hold a job, health insurance, relationships, a life or pretty much anything.
The main reason I am asking for help is so I can help myself, this has become like a job for me unfortunately. There is no cure for this condition, there are medicines that help control it to a certain extent. I am unable to keep any of that stuff at hand right now because I cannot hold a job or health insurance. I have lost 6 jobs in the past 2 years because I had to call in a lot due to this condition, which I wish more people understood why I had to do those things. On top of it all I was involved in a car accident with my family in February injuring my neck and shoulder. So I am trying to balance getting healthy and keeping my head above water. 
So here I am admitting that I am sinking and I need a helping hand. I am not asking for pity or anyone to feel sorry for me!! I am asking for help. I need and want more than anything to get back on track with insurance, medication, mindset and my own bills. Having a disorder of this nature unfortunately all of the things I need right now make my stress level go through the roof and my symptoms increase. So I am asking for help. I will beat this! I will learn to live a life again, a healthy and positive life. So if you are at all able to help I am asking! I want to thank anyone who reads this, thank you for helping me have a fighting chance to become myself again! Thank you for believing in me!

Donations

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  • Kali Grozdanic  
    • $25 
    • 51 mos
  • Anonymous 
    • $25 
    • 66 mos
  • Barry Wax 
    • $50 
    • 66 mos
  • Chris Hollywood 
    • $25 
    • 66 mos
  • Larry Cooper 
    • $50 
    • 67 mos
See all

Organizer

Heather Eckert 
Organizer
St. Petersburg, FL
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