Help ALS patient with expenses

Hi.  My name is Rachel Rebman.  At first, I was diagnosed with ALS.  Then I was diagnosed with Lyme Disease, which mimics ALS.  Now, after a genetic test, I have discovered I have 14 genetic mutations in my liver.  I cannot process, and never have been able to process, Vitamins B and D.  I also cannot detox.  I cannot process protein.  These address just 4 of the mutations.

In all of this, I have accumulated medical bills that I paid on credit cards and now I'm drowning in debt.  Then I found out Medicare wouldn't pay for some of my 6 months of physical therapy.  Then I found out I had to have jawbone surgery due to four cavitations that were stressing my body (10 major infectious bacteria were found in my jawbone).  All of it added up. 

The supplements alone, to bypass my liver mutations, will cost somewhere around $5,000 a month.  The supplement list is 5 pages long and the first five on the first page cost $415, so I'm probably grossly underestimating that cost.

I have been given 2-5 years to live and that was 2 years ago.  I am in a wheelchair and I'm losing use of my arms and hands and breathing.  I am on SSDI ($900 per month) and would be homeless if it weren't for my elderly parents.

Please help me.  My needs are great.  I, at least, don't want to leave my medical bills for my two daughters to pay off. 

Thank you for your kindness!

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Organizer

Rachel Danke-Rebman 
Organizer
Waupaca, WI
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