Helping Meadow Get Healthy Again!

Hi, my name is Jessica. My daughter Meadow is 10 years old. She's in 5th Grade and hasn't been able to attend hardly any school this year so far. She has been suffering from a rare gastric condition for the last few years on top of a few other medical conditions that have physically knocked her down a peg each time they flare up. Meadow suffers from a pelvic floor evacuation disorder which causes her severe pain anytime she sits on the toilet and tries to empty her bowels or bladder. She suffers from severe chronic constipation which they believe is a result of her pelvic floor muscles being so tense and fatigued that they've shortened themselves to where therapy is now involved with trying to strenghten & train these muscles to work again properly. We've had to have to travel to Mayo Clinic in Rochester, MN 8 hours from our home over a half dozen times in the past 3 months; to where they've now placed her into a Pelvic Floor Evacuation Program that is 2 weeks long Mon-Fri 9am-5pm of intense therapy with a nursing team. She has to travel 6 hours in one trip for physical therapy weekly, then after completing therapy winds up spending multiple days in bed with severe stomach pain.
     She suffers from a rumination syndrome disorder that causes her to vomit excessively all day long anything that she eats or drinks. This condition causes her to be doubled over in pain days on end in pure agony.  She spends countless times in the hospital on IV's, she's had multiple surgeries, countless painful procedures & tests; and yet several doctors are still working with her at multiple medical facilities to find and treat a successful piece to what they keep telling our family is a "multi-piece complex puzzle." Things have gotten devastatingly worse for her since January 2014, she's experienced many more hospitalizations, severe vomiting and diarreah spells, worsening pain, and still no end in sight.  In August, we found out that Meadow had picked up a parasite Giardia and had blown her symptoms out of the water. She was hospitalized for over 10 days with no end in sight of calming down her vomiting, with doctors saying that this parasite had caused Irritable Bowel Syndrome and Rumination to collide inside of her, causing her body to literally go "haywire" and have not been able to get it under control yet. She had to have her gall bladder removed in September, due to all of these problems, her gall bladder was not functioning and the surgeon told us it was full of adhesions and severely inflamed. They hoped that would have stopped some of her symptoms, but they continued worsen. 
     Three weeks ago, Meadow was hospitalized again for excessive vomiting, dehydration, UTI, and more. She still could not hold down any foods or liquids.  After 3 days, they transferred her 3 hours from home to Sanford Children's Hospital in Sioux Falls, SD with more GI specialists. The doctor's placed a feeding tube into Meadow's nose, through her stomach, into her small intestines.  Her stomach is on complete rest and she can not eat ANYTHING. This is temporarily holding her over as a "band-aid" as they've described it to us, until she moves on to her next piece of the puzzle in Columbus, Ohio. The specialists at Mayo have referred Meadow to Nationwide Children's Hospital, 18 hours away from our home, for further treatment because her case is so severe. We travel there January 18 for several days of very long testing and meeting with the team of GI doctors on her case.
     These medical hardships that our family has been faced with has taken a toll not only financially, but physically, mentally, & stressful as well. I can only stay at home with Meadow and our 22 month old other daughter because I am on travel & call for medical travel/treatment for her 24-7. My husband has had to miss countless days of work for family emergencies with Meadow; he doesn't get any paid sick time offered to him and he ate up his vacation the first week of January when Meadow underwent another surgery. We have exhausted all of our means from traveling, fuel, hospitals, medical bills, an d more. Insurance is not covering large parts of Meadow's treatments, because according to their guidelines some things the hospitals code/bill for are not covered. One program alone at Mayo Meadow will be in,  away from her home the entire month of February is costing $7,500.00 out of pocket as a "pre-service" deposit. 
     Our family is asking for any little bit of help you can possbly give to try and help us get our daughter back to the amazing, athletic, strong, happy & fun-loving, intelligent, outgoing girl that she is. She cries to us asking "when are the doctors going to be able to help fix her and make her normal again?" It truly breaks my heart each time I have to tell her.... this hopefully will be the last needle poke, the last test/procedure, the last painful thing they will do, the last surgery, the last hospital; before something is going to go positively our way and help you be better. Meadow is so brave and so very strong; I envy her courage and positive attitude that she shows each and every day of her challenging circumstances. Please keep her and our family in your thoughts and prayers. Thank you kindly.
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Organizer

Jessica Monroe-Remily 
Organizer
Brentford, SD
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