Main fundraiser photo

Dravet syndrome uk

Do you want to join me in making a difference? I'm raising money in aid of Dravet Syndrome UK and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.
More information about Dravet
Syndrome UK: Dravet Syndrome UK is an independent UK charity formed in 2008 and is dedicated to improving the lives of the families who are affected by this catastrophic life limiting condition through our three aim:
- To support families affected by Dravet syndrome emotionally, practically and financially.
- To fund medical research into Dravet syndrome.
- To raise awareness and understanding of Dravet syndrome within the professional community.

In the profile picture is my brother Gwion and his wonderful and amazing daughter Celyn Mai. Celyn was born with and continues to live with a rare form of epilepsy-Dravet syndrome.

Please donate as much or as little as you can in order to support families living with this syndrome.
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    Organizer

    Guto ELIS-Williams
    Organizer
    Dravet Syndrome UK
    Beneficiary

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