Jestin's Story: A quest to walk #ForJestinWeWill

Jestin is 5 years old and  was diagnosed with a condition called Arthrogryposis at birth . There is no cure for Arthrogryposis , only treatment to better the quality of Jestin's life . He is affected in all four limbs with the most severe contractures being his legs/knees . In the course of his life he has had multiple procedures done including having two types of 8 plate being inserted between the growth plate in his legs to help with knee extension . We've tried using KAFO's (knee ankle foot) very extensive locked braces to try and help him gain the use of his legs to walk. At the time , the procedures and braces did aide him in being able to take a few steps but nothing long term.  Over the past few months Jestin loss his ability to walk wearing his braces due to a complication of Arthrogryposis and contracture regression . After another visit with the doctors here in Memphis , Tn we were told unfortunately there was nothing else they could do . There was a moment of tears and uncertainty but like the strong superhero he is we are pushing forward .

In a continuation of Jestin's quest to walk independently , he is scheduled to have the biggest surgery of his life and we will need your support . In April , Jestin and Mommy will need to travel to West Palm Beach Florida where we are required to stay for a duration of 6 weeks . He will have a combination of procedures done geared towards kids in the Arthogryposis community on both legs and then very intense therapy in the days/weeks following to get our #SuperJestin up and 

Jestin is also a twin and one of four siblings (brothers) with whom he one day wants to walk and play with as they all do . 

Any funds collected will be used to help with Jestin's medical bills as insurance won't cover the procedure completely . We are still awaiting a quote for insurance coverage and a separate hospital bill regarding his post surgery stay . Funds will also help with travel , transportation and lodging for the duration of the time we are in West Palm Beach Florida.  His surgery will be at The Paley Institute performed by Dr. David Feldman . Physical and possibly occupational therapy will also be at the same facility . Currently these procedures are only performed by Dr. Feldman and have been proven to be very successful . This will be life changing for us , we appreciate you taking the time out to read Jestin's Story. 

Thank you in advance -Jestin's Mom


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Jestin Davis 
Memphis, TN
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