Today, I am sharing my brother’s chance for a new beginning and I hope you will take a few moments to read and share his story.
Only a few friends and family know that Jessy has had a rapid decline in health over the past two years and the life that he knew as a passionate filmmaker and family man has been turned upside down.
About a year ago, Jessy was diagnosed with the rare and debilitating autoimmune disease known as CIDP, Chronic Inflammatory Demyelinating Polyneuropathy. His immune system is attacking his nerves causing the loss of function and extreame pain in his right hand and foot. Leaving his wife, Bridgette Raimer, as the sole provider for their family of four.
The current treatment for CIDP is IVIG (Intravenous Immunoglobulin) therapy. This treatment only slows the progression of CIDP, it does not cure the disease. Jessy must receive infusions every ten days or his condition will decline rapidly. Each dose of IVIG is comprised of one thousand plasma donations, the cost per treatment is $47,000.00. A large portion of which is covered by insurance.
Although Jessy and Bridgette are very thankful for the IVIG therapy, it offers little hope for long term solutions. Fortunately, about six months ago Bridgette discovered a CIDP stem cell study being conducted at Northwestern University in Chicago. So with great hope for the future, I share the incredible news that Jessy has just been accepted into the study!!!
HSCT, hematopoietic stem cell transplant, is a six step treatment that will use Jessy’s own stem cells in combination with chemotherapy to generate a new immune system.
It is a lengthy process that will require Jessy and other family members to reside in Chicago for several weeks during treatment. Unfortunately, insurance will only cover 60% of the transplant procedure and none of the expenses for travel and lodging. Jessy and Bridgette were able to refinance their home in order to pay the $10,000.00 deposit, but that will only cover a portion of the transplant cost.
I am reaching out today to ask you for hope for Jessy and his family. Every donation, like, and share is one step closer to a better future!
Thank you for taking the time to read Jessy's story.
Bonny E. Fielding (Loving Sister)
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