I never imagined I would be writing something like this. It’s a mothers worst nightmare

For the past almost 6 years, I have watched my baby, Jessica, fight a battle that most people have never even heard of — Stiff Person Syndrome. It is a rare, devastating neurological disease that has no cure and often progresses quickly. What I have witnessed has been nothing short of heartbreaking.

Jess is the strongest person I know… even when she is at her weakest.

Every day, she pushes through pain that would stop most people in their tracks. She rarely complains. She smiles when she can. She tells everyone she’s okay — even when I can see she’s not. I’ve held her hand through more doctor appointments, tests, hospital visits, and sleepless nights than I can count.

But now… there is a glimmer of hope.

Jessica has the opportunity to pursue a treatment program in Florida that could truly change — and possibly save — her life. This isn’t just symptom management. This is regenerative therapy that could help her body heal, help her gain weight again, and give her a real chance at getting back to a normal life.

Right now, she is fighting just to stay above 100 pounds.

In Canada, the next medical step is chemotherapy. But before we accept that path, we want to fight with everything we have for a chance at something better.

The clinic offers regenerative stem cell therapy, hypobaric chamber treatments, and other supportive therapies that we truly believe could help her body heal. Jessica has already started using some of their supplements and, for the first time in a long time, we noticed real changes in her body.

This could truly be her last chance.

The reality is — it is expensive. The initial consultation alone is $500US, and the full treatment program is expected to exceed $20,000, not including travel and living costs while she is there.

We are humbly asking for help to give her that chance.

If you cannot donate, please consider sharing. Every prayer, every dollar, every share means more to us than words can express.

While we are away fighting for Jessica’s life, our home expenses don’t stop — but neither does our hope.

Thank you for taking the time to read our story and for standing beside us in this fight.

With gratitude and hope,

a mother who loves her daughter more than life,

Laurie

a message from Jessica ♥️

Fighting a Rare Disease — Need One Chance at Treatment

I am battling Stiff Person Syndrome, a rare, progressive neurological disease that is slowly taking my life.

I’ve spent 5+ years in constant pain, endless doctors’ visits, and treatments that barely keep me going as is. But I need a fighting chance.

I don’t want chemo. I don’t believe that will heal me

That is the path I am being pushed toward.

but I can’t accept that. Not yet. I want to get better.

after years of research I have found a treatment program in Florida that offers something I have not been given here:

A real chance at recovery.

This includes:

• Regenerative stem cell therapy

• specialized gene therapy

• Hyperbaric oxygen therapy

• Advanced supportive treatments

I have already spoke with this facility, the head of the institute wants to take on my file because he has never worked with someone with this disease. It’s all lining up.. if we can get a change

if nothing change… The Reality of Staying Alive Right Now

To function — to even maintain where I am — I am supposed to receive multiple therapies every single week.

These are not luxuries. These are what keep my body from deteriorating faster.

Weekly medical costs:

• Medication: $50

• Chiropractic care: $60

• Osteopathy: $140

• Physiotherapy: $100

• Therapy (mental health support): ~$120

• Aqua therapy: ~$75

Total weekly care needed: ~$545

Over $2,000 per month just to maintain

I have not been able to afford this level of care in months.

That means I am not maintaining — I am declining. Fast. Muscle loss. Flexibility loss. Weight loss.

Why I Am Asking for Help

The treatment in Florida is expensive.

• Initial consultation: $500

• Treatment program: $20,000+

• Travel, accommodation, and living costs on top of that

At the same time, while I am away fighting for my life, my responsibilities at home do not stop.

Monthly home expenses:

• Rent: $1,700

• Car 606$

• Hydro: $180

• Internet: $86

• Cell phone: $154

• Credit card payments: $1,200

• Insurance 135$

This is My Reality, disability doesn’t even pay a 1/5 of those expenses.

Without proper care, this disease progresses.

Without access to treatment, I will continue to lose weight, strength, and function.

I am already fighting to keep my body above 100 pounds. If I lose any more weight I can’t even receive the treatment I can get here because it won’t be safe anymore.

I do not want my story to end because I couldn’t afford the care that might save my life

This is not easy for me.

I have always been someone who pushed through, who kept going no matter what. But I have reached a point where I cannot do this alone.

I am asking for the chance to fight properly.

The chance to access treatment.

The chance to live.

I would sell everything I own for that chance.

While I am away fighting for my life, my home expenses don’t stop — but neither does my hope.

If you are in a position to help — whether by donating or sharing — I am deeply grateful.

Thank you for taking the time to read my story and for giving me a chance.

jessica