If you are reading this, thank you for taking time out of your day to hear our story <333.
My name is Heather Lynn. My husband Jeremy and I met a decade ago. At the time I was in college as a communications student, and my husband was an aspiring musician. When we met it just seemed natural, and he was the man I had devotedly hoped and prayed for- compassionate, loyal, and most importantly humble. This upcoming October 12th will mark our third wedding anniversary.
We have grown from young adults uncertain about where the future would take us, to adults who have found themselves again in uncertainty. You might say, “this is reality for everyone,” and "the future is always unknown." With the help of science, we recently decided to look into the future to prepare for the worst and hope for the best. It was a heavy decision that came with mixed emotions, and one that took 10 years to act on. We made this decision to protect not only ourselves, but future generations.
My husband Jeremy was recently tested to determine if he is positive for a genetic disease that runs in his family. The disease is known as Huntington's, which is a degenerative neurological disorder. I will say that it is not curable, and as of now the progression of it can not be slowed down. It is a debilitating illness that robs the individual of themself, both physically and mentally. The disorder is also known as Woody Guthrie Disease, named after the music legend, who passed away from complications of Huntington's in 1967. I will say that my fear is real in the wake of this unknown reality. This illness steals the person you love so dearly, and strips them down to someone you don’t recognize, and can’t remember. Much to our dismay, Jeremy tested positive for the Hungtington's genetic marker. While he is not currently showing any signs or symptoms of the disease, it will eventually begin it's progression.
We want to break this cycle in our family, and be proactive in our attempts to face this disease in the best possible way. At present the only cure we have available is to delete this awful disease from our bloodline. We are asking for loving donations to help us fund inevitable treatment necessary to combat the progression of the disease, in addition to taking care of a family, running a household, and costly procedures needed to have children without the diease. In addition, we would like to make a donation to a Huntington's foundation close to our hearts, who has helped us throughout the testing process. This donation will go to other individuals and families living with this disease.
Please consider donating to help us fight this disease in our family, in addition to raising awareness of it through our story. If you can not donate at this time we understand, and would like you to consider sharing this on facebook/communicating it to others in your local network of people and contacts.
From the depths of our hearts, THANK YOU to all who have contributed. Whether we know you or not, please know that you have helped shine light on us during a very scary time, and have been a part of something bigger than all of us. ...
"I learned that courage was not the absence of fear, but the triumph over it. The brave man is not he who does not feel afraid, but he who conquers that fear.