Jeremy Amster Support Fund

In April of 2016, Jeremy was admitted to the University of Michigan hospital with some severe GI issues. He was diagnosed with a rare condition called Enterocolic Lymphatic Phlebitis. This is an aggressive disease that causes ischemia in the intestine killing off that portion of the organ. There is no known medicine and the only treatment is surgery. So, after many discussions, Jeremy had a resection of the colon.

Two and a half short months later, the symptoms returned again. A test confirmed the disease was back in the rest of his colon. Again, after much discussion and consultation, it was decided a surgery to remove the rest of his colon was needed. This surgery was believed to be curative. On August 1st, he had another major surgery to remove the rest of his colon.

In October, once again, the same symptoms appeared. Jeremy was admitted to the hospital on Thursday, October 27th. A test was repeated and the doctors were shocked to see the disease has returned aggressively once again.

There have been 50 case studies across the world ever recorded of this disease. In every single case, surgery was curative. Jeremy's case is the first one ever recorded where the disease returned not once, but twice now after surgery.

Some of the brightest minds in the country in many different departments are now being consulted. Everything from here on out is purely experimental.

Biopsies have been done, blood has been drawn, extreme medicine has been tried and nothing has come back positive so far. As his intestine moves closer to perforation, the doctors are struggling for new ideas to try.

For now, Jeremy remains hospitalized so he can be closely monitored with his intestine being in such fragile condition.

Jeremy has spent most of the last 6 months in and out of the hospital. Most of that time he has been unemployed. On top of the debt incurred from living expenses, the only medical therapy that is a consideration for long term will be close to $22,000 monthly.