I am a single mother of an incredible 11 year old boy and he wants his mama back! I am not able to work due to the debilitating pain that I live with daily. I need help raising the money for Left Occiputal Craniotomy with Resection of Pineal Tumor (fancy way to say brain surgery to remove a tumor). I went to see Dr Kim in Houston, TX (considered the #1 surgeon for this type of tumor) and he confirmed that it is a 14mm pineal tumor and wanted to take it out ASAP. I had surgery scheduled for 11/29/17, but, insurance denied coverage. (I live in PA and my insurance is out of network). There are no doctors locally that will perform this surgery, basically because none of them believe it causes any issues. (Please read my latest update)
In June 2016 my MRI scan showed a 10mm pineal cyst, which almost every doctor I've seen has described as an incidental finding and asymptomatic. Well... It's causing plenty of symptoms. Intense daily headaches, pressure in my head, double vision, blurry vision, numbness and tingling in my entire body, muscle spasms, memory loss, terrible finding words, fainting, blacking out, dizziness, vertigo, tinnitus. I had neck surgery (ACDF C5-C6) in June 2017 to try and help my headaches. This only increased the pressure in my head, making my headaches worse. I have a laundry list of other diagnoses, including Chiari Malformation, Ehlers Danlos Syndrome, Occipital Nuralgia, Osteopenia, Hypothyroidism, Degenerative Disc Disease, Fibromyalgia, Myofascial pain syndrome, cervical facet syndrome, insomnia and so many others. Please donate what you can. And share this page. Thank you!!!!!!Thank you so very very much. I just want my life back, especially for my son. He deserves it.