Jennifer White Lyme Disease Treatment

Hi there,

For those who may not know me, my name is Jennifer (Jenny) White, and I have been battling Late Stage Lyme Disease for almost four years now. It took nearly a year to receive the proper diagnosis for what was causing the slow spiral of crippling pain and numerous debilitating symptoms. If you know me, you know I don't do anything halfway. I have committed myself to multiple treatments, diets and healing modalities over the years, following them to a T, leaving no stone unturned. Unfortunately, I haven't found a successful treatment for myself. Sadly, this is a common theme for people with Chronic or Late Stage Lyme Disease. Many other factors like Co-Infections, sensitivities to mold and much more plague the immune system making it tremendously difficult to heal. But, it is possible! I have also spent these years educating myself, reading books, and watching success stories of recovery and a return to complete health that I know I can too.

I have recently begun a new, very promising treatment called SOT for Lyme at The Genesis Center here in Georgia. My profile picture is me receiving this SOT treatment. Alongside treating Lyme with SOT, we are using a combination of Conventional and Integrative medicines to treat other chronic infections, also known as Co-Infections, that have had devastating effects on my body, particularly my Central and Autonomic Nervous Systems. After the course of treatment, there will be a "rebuild and repair stage" with healing peptide injections and most likely Stem Cells to repair the damage to my nerves, joints, organs and tissues. Please read more about this treatment here and why it is so successful!

http://thegenesiscenter.com/lyme/

This form of treatment and any other treatments I have done in the last three years have not been covered by insurance. Unfortunately, Lyme Disease and Co-Infection testing is complicated and often missed in our medical system. Unless you have a recent tick bite (where the bacteria is still in the bloodstream), typical Lyme Disease symptoms and a positive test per the CDC, Lyme Disease is not recognized past those stages with no treatment options for the vast majority of patients suffering from this complicated illness. It is a highly complex and challenging bacteria to treat in its later stages. I am compelled to share my full story on this, but I had no tick bite that I saw, no bulls-eye rash, and no typical Lyme Disease symptoms. It all came about quite the opposite. Fortunately, the world of Integrative, Holistic and Functional Medicine recognizes and treats Lyme Disease with many other forms of testing and massive success in treating it. There are recovery stories left and right. However, they are unique to the person and their journey. The downfall is, Insurance will not work with these Doctors, Medical Centers and Treatments. My husband and I and my family's loving support have spent an incredible amount on uncovered expenses to help me get treatment and hopefully regain my life. We are reaching out to family, friends and others to help support in any way possible to cover the expenses of this treatment. Every little bit counts if you can help. If not, love and prayers are greatly welcomed.

This has been an incredibly tough journey so far and one that has been difficult to confront, let alone be able to share with others. My ultimate goal is to regain my health and work towards a career in health coaching. Supporting, encouraging and guiding others in leading a healthy lifestyle physically and mentally, as well as navigating the treacherous road of healing from any chronic illness. I truly appreciate any help and vow to use this pain and experience to help others.

It means so much to me to share my entire journey, but I am just not there yet. It would honestly take a book. It is triggering, uncomfortable, very hard to reach out and ask for help and share what has actually transpired over the past 4 years.

Below are some details of my journey for those who would like to read.

This October will be four years since the onset of symptoms that have severely impacted my life. The amount of confusion, pain, suffering, financial devastation and strain feels almost impossible to put into words or condense. My day to day has had many ups and downs relying on several medications to get through the day and sleep at night. As well as not being able to work more than a few hours a week even from the comfort of my home. Besides the physical pain, my ability to think, process and concentrate is sometimes non existent. Before all of this, I was highly active. I've worked with horses since I was 16 from training and competing, grooming, and body clipping show horses. My last job with horses was working as a vet tech which was awesome! I loved to work out, lift weights, go to the beach or boating, and spend time with family and friends. I enjoyed cooking delicious meals, going out to eat and indulging in wine and cocktails. I slowly watched the things I loved slip through my fingers. Coping with this mentally has been one of the most difficult challenges I have ever faced. Second to the actual pain. A type of pain I didn't know could even exist. Like a 24-hour permanent sunburn making it incredibly hard to tolerate the softest clothing, socks, shoes, and temperatures. Searing pain in all of my joints, muscle aches, twitching and spasms, and a deep vibrating in my legs and feet that can go on for days at a time. Deep aching in my bones and a wrenching pain in my spine. Blood pooling in my hands and feet when I am stagnant and almost impossible to sit with my feet on the floor or stand still. Exhaustion and fatigue, yet somehow feeling restless and amped up. At my worst pain levels are beyond a 10 out of 10, feeling like my skin is too tight for my body, feeling raw, burnt and almost like sand or fiberglass is on me. Warm shower water, soft sheets or just existing is a daily challenge.

Although I miss the person I was and the things I used to do, this has been incredibly humbling to say the least. I have gained a new perspective of life and immense gratitude for the smallest of things that I certainly would’ve taken for granted in the past. Like walking, riding a bike, wearing clothes or just sitting and watching the sun dance on the leaves. Most importantly, it brought me to having a relationship with God. That alone has led me to heal in so many other areas of myself as well as the strength to endure this trial. To surrender and let go and allow myself to to trust the process, having faith.. something which I lacked tremendously before. I spent so much time wondering why me? In hindsight, without all of the suffering I never would have had the opportunity to grow.

It is taking a village to help me along the path of getting my health back to resuming an everyday life. The support of my husband, family and friends, two separate Doctors, and a team of practitioners who constantly guide me in living a less toxic lifestyle to lessen the burden on my body, detoxification, nutrition, Life Coach, Trauma Therapy and more. When trying to overcome an illness such as this, nutrition plays a massive role. Removing inflammatory foods is crucial, leaving you with a minimal diet and hardly any eating out. I am healing my relationship with food after many restrictive diets and finding peace in eating a clean, organic whole foods diet rich in nutrients. I prepare about 95% of my food, which is definitely exhausting in itself, but it is also something that I enjoy and have found joy in the ability to even do for myself.

Over the years, I've discovered my body has some issues properly detoxing, which is essential for fending off disease and recovering from it. I have learned so much by trying many treatments and protocols, from gentle to extreme. I spent almost a year bouncing around in Conventional Medicine searching for answers. Two Podiatrists, four neurologists, a rheumatologist, two orthopedic surgeons, a neurosurgeon, multiple chiropractors and treatments, ultrasounds, x-rays, shockwave therapy, five MRIs, months of physical therapy and still no answers. I received some possible diagnoses, mainly symptoms or syndromes with unknown causes. I was enrolled to visit Johns Hopkins, but the waitlist was six months long and I was a self pay patient. I would've had to repeat the same process of working my way through Doctors and was advised by two of my own doctors it would be a waste of time based on all of my test results. Honestly, I didn't feel like I would live six more months at the rate my symptoms increased. This is when a close friend introduced me to a special treatment center in Clearwater, Florida, and I learned about the world of Functional and Integrative Medicine. I was diagnosed with Lyme Disease and Mold Toxicity in September of 2019 by an Infectious Disease Functional Medicine Doctor in Clearwater, FL.

In a perfect world, Conventional and Integrative medicine would work together and use each other's knowledge to broaden how to help people prevent and heal chronic disease, not just medicate and manage the symptoms of it. Functional and Integrative Medicine is a practice that treats health holistically, looking at the entire body as a whole rather than separate pieces. They take into account nutrition, mental/ emotional health, lifestyle, movement, sleep, environment, toxicities or imbalances in the body and work to get to the root cause of dis-ease in the body. It is not a quick fix but life-changing over time.

Treatments

In Clearwater, I spent four months at Life Works Wellness Center, three days a week receiving IV Ozone Therapy, Nutritional IVs, Ozone Sauna, PEMF, and many herbal and supportive supplements. I had a Picc Line put in only to be removed three days later because I developed a blood clot in my left armpit. So without that, I had to get a IV Catheter for the entire duration of treatment. Friends of our family were kind enough to let me stay in their home while they traveled for this treatment. I am forever grateful to them. However, I struggled immensely by taking this treatment alone, surrounded by incredibly sick people and learning more about how devastating the illness I was facing could be.

I took a break over the holiday to remove my breast implants, considering the heavy amount of science proving them to be highly hazardous to the human body. There was no way I was letting that be a factor in my health. I don't regret that surgery for a second, but it did a number on my body, and as I recovered, more symptoms and increased pain came. My mental health was at an all-time low. I wasn't able to sleep, I was scared to death, and things in my personal life were adjusting to all of these changes, expenses and heaviness. At this point, I still wasn't on pain medication. I was scared to take the prescribed drugs and tried to convince myself I could beat this before getting on heavy meds. I was wrong. I needed them, and it took me some time, a life coach and a Doctor I trusted to help encourage me to use these as tools.

In January of 2020, I began with a new Doctor in Tampa who I still work with today. I did strong IV antibiotics for 5 months, IV Ketamine, IV ALA, High Dose Vitamin C heavy metal detox and other herbal protocols. Again, four days a week with a IV Catheter in my arms and my veins were over it. My mom came to live with me during these four months for support. We stayed in an apartment that was ran by a unique company that assured patients would be in a safe environment free of mold, a quality air filter, and adequately filtered water, which came at a hefty price of course. By April of 2020, I was somewhat stable. We had gotten rid of some very scary symptoms like sharp brain zaps, electrical or sharp shocks in my legs, racing heart beat/palpitations but I still had all of the nerve and joint pain as well as other issues. I was at the end of my rope, very low on finances and no significant improvement.

I shared my story on Facebook and was linked with a practitioner who had almost an identical story as mine, and she was completely healed and now helping others. She worked using Epigenetics and I was taking nearly 80 supplements a day to optimize my detox pathway's and work around genetic issues. I was so hopeful because of her success story but after 8 months of trying this way I was slowly just getting worse.

From there I worked with a doctor in California I was sure was going to change my life. She was "the doctor" in the field of chronic illness, especially stealthy pathogens like Lyme, co- infections, mold, parasites, metals. Respectfully, she was transitioning in her career to a larger platform and wasn't able to dedicate the individual attention my case needed. I was not able to tolerate the protocols prescribed to me and my body completely tanked and my health deteriorated rapidly. After 8 months of that, I was done and I had no idea what to do.

I applied to join a group healing community called Root Cause Formula in March of 2021. I prayed and prayed to get in as I honestly felt so alone and isolated, so scared and hopeless and that my body simply couldn't handle anymore "treatments". By the grace of God I was accepted and I have been with them ever since. Being surrounded by loving practitioners as well as other women from all walks of life healing from all sorts of things was exactly where I needed to be. I found community support and friendships, and healed in ways mentally and emotionally I had no idea I needed. I have learned so much about chronic illness, coping mechanisms, mindset, brain/ neural retraining, ways to optimize holistic health and most importantly I have a community. We have zoom calls every Monday and a group chat with women I met on this journey that have been an absolute blessing and dear friends that are an incredible support system. Root Cause Formula has helped me build myself back up and my foundation of health so I can actually handle stronger treatment again.

If you’ve made it this far, I sincerely thank you for taking the time to read this. I am aware it is a lot, but this is a brief summarization of my full experience. For anyone who is going through a similar situation or knows someone who is struggling, please feel free to reach out. I used to think that I was failing at healing, it sure seems that way sometimes! But just like anything in life, I am learning to accept the failures (or attempts) to heal on my journey or I may never find success. From the bottom of my heart, thank you for any and all support in helping me with this treatment. I am optimistic for the future and truly believe I will be standing firmly on the other side of this for the better.

Sincerely,

Jenny