Jen Calabrese Corey Lyme Fund

A dear friend of mine is dealing with this horrible disease, Late Stage Neurological Lyme Disease.   "IT SICKENS ME BEYOND WORDS TO KNOW THE REASON I AM UNABLE TO GET THE EFFECTIVE TREATMENT I NEED, PAID FOR BY THE HEALTH INSURANCE I HAVE WORKED HARD TO GET AND PAY FOR, TO PUT THIS GOD AWFUL DISEASE INTO REMISSION IS BECAUSE THE CDC, INFECTIOUS DISEASE  SOCIETY OF AMERICA AND AMERICAN LYME DISEASE FOUNDATION   ALL DENY MY DIAGNOSES IS A REAL DIAGNOSES. THOUSANDS OF LYME PATIENTS ARE GOING WITHOUT TREATMENT DUE TO THIS. THIS DISEASE HAS HAD 8 YEARS TO ATTACK AND DAMAGE EVERY ORGAN OF MY BODY INCLUDING MY CENTRAL AND PERIPHERAL NERVOUS SYSTEM.  IN THE PAST YEAR, MY HEALTH WAS SLOWLY DECLINING AND BY MAY I WOKE UP HARDLY ABLE TO WALK AND COULD NOT HOLD MY HEAD AND NECK UP WITHOUT SUPPORT. MY MUSCLE STRENGTH DETERIORATED  RAPIDLY ALONG WITH MY OVERALL HEALTH. THE ER RULED OUT A STROKE AND SENT ME HOME.  TO  MAKE AN EXTREMLY LONG STORY SHORT , I WAS PASSED FROM SPECIALIST TO SPECIALIST WITH NO ANSWERS PROVIDED. ONE DOCTOR TOLD ME TO GO HOME AND FIND A COUNELOR BECAUSE MY BRAIN MUST BE SUPPRESSING TRAUMA FROM CHILDHOOD THAT HAS NOW MANIFESTED IN PHYSICAL SICKNESS????  THE LYME TESTS, ELISA AND WESTERN BLOT ARE APPROX 75 PERCENT INACCURATE, THEREFORE PROPER DIAGNOSES TAKES YEARS AND BY THAT TIME THE DAMAGE IS EXTENSIVE.  DUE TO ALL OF THIS, THERE ARE ONLY A HANDFUL OF DOCTORS WHO WILL EVEN ACKNOWLEDGE , NEVER MIND TREAT THIS DISEASE.  AND THE ONES WHO DO, DON'T TAKE INSURANCE." These are her words.  It amazes me that she can not get the help she needs, so I thought to reach out to everyone for help. Whatever you can do to help her would be greatly appreciated it.  The lyme disease has triggered multiple sclerosis and she is undergoing testing due to significant cardiac issues at this time . She started treatment for the Lyme in August with oral medications . When no improvement was noted, her doctor switched her treatment to daily iv infusions. Slow improvement was noted and after 30 days the insurance company stopped coverage. This is exactly what happens to majority of late stage neurological lyme  patients. Insurance companies follow CDC guidlines that are extremely innacurate, and don't forget,  the CDC denies the diagnoses in the first place. An appeal was made and denied. Her short term disablity insurance coverage ended last month. The cost of living expenses and out of pocket medical bills is not manageable. Her husband has been working on average 60 hours a week yet it is not enough to meet the financial demands. The loss of her income is substantial. Cost of the daily iv infustions are $1,000.00 per week. I am asking everyone to please help her in any way you can. Any contribution would be greatly appreciated. ♡♡♡♡

Donations

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  • Leeayn Burke 
    • $50 
    • 48 mos
  • Douglas Weatherbee  
    • $50 
    • 51 mos
  • Anonymous 
    • $50 
    • 52 mos
  • Anonymous 
    • $50 
    • 52 mos
  • Anonymous 
    • $50 
    • 52 mos
See all

Organizer

Kim Gibson Di Cioccio 
Organizer
Windsor Locks, CT
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