Help get Jd to Florida doctors Round 2.

We are raising these funds to help JD cover funding to see a Dysautonomia specialist in Clearwater, Florida.

As many of you know, Jd has been extremely sick again since the beginning of 2021 and has gotten worse since November of 2021.

Jd started with passing out, erratic heart rates, sweats, shaking, left side of his body going numb, falling and his left leg and foot turning purple (we found out due to lack of circulation.)

He was hospitalized originally during 2021 with something called a "Short QT" which meant that his heart doesn't fully charge. Originally the cardiologist wanted to place a pacemaker, but after many heart tests and scopes, all doctors on board quickly agreed that was not the answer.

The doctors all quickly agreed Jd has something called Dysautonomia. He was orginally diagnoised with a form called VVS or Vansvagal syncope but was later changed to be a more sever form of MSA or Multiple System Atrophy.

Most people are over 40 when diagoised with this form, but because of the sever damage to Jds esopahgus, his final diagnosis at this time is the MSA.

JDs Vagus nerve, (the nerve that runs through your esophagus.The vagus nerve is responsible for the regulation of internal organ functions, such as digestion, heart rate, and respiratory rate, as well as vasomotor activity, and certain reflex actions, such as coughing, sneezing, swallowing, and vomiting) is severely damaged due to multiple surgeries on his esophagus. ( 11 sugeries to be exact)

Jd has been to specialist and spoke to specialist from all across the country. unfortunatly, not many are willing to take him on with his diagonisis and all other medial conditions he has going on.

We were finally in contact with a specialist in Clearwater, Florida whom is part of the Dysautonimia project as well as the Innovation Reserch facility in Florida, Dr Trevino. He is highly regarded in his field and his group is also running clinical, FDA trial studies for Dysautonomia.

Unfortunetly, Jds medical insurance will not cover the treatment visits/ 2 week stay in clearwater, testing or medication. ( At this time, we dont know if he will quailfy for an FDA trial study until he is seen by the doctor and all testing is done over the 2 week period) The doctor will see him and treat him in clearwater no matter what, but it would be a great thing if he did qualify for an FDA trial study to see if symptoms and progression of the diease can be slowed more.

We are working on getting him there as soon as possible. As many of you know, Jds body slows down more and more. He sleeps some days up to 22 hours a day, eating has slowed tremdiuosly. (As many of you know, jd liked to eat. LOL) He has now lost 47 pounds in the last 10 weeks. He is weak a lot and the circulation issues with his left leg continue to get worse. (You can see his leg turn purple more and go up his leg higher at points. )

Background on JD:

JD was born at 32 weeks, weighing 3 pounds, with a medical complication known as a Tracheoesophageal fistula. When JD was 5 days old, he had his first tracheo surgery.

Jd was also only born with one kidney which also needed surgery at 2 years old.

Over the years, JD has needed a total of 27 additional surgeries and proccedures. Not including all the testing, xrays, swallow studies, heart testing and so much more.

We are very grateful for all of Jds supporters. Please keep him in your prayers as we navigate these waters with him.