Jayson's story
Donation protected
Jayson is an 11 yr old boy with a history of congenital femoral deficiency, which basically means his left femur bone grows at an extremely slow rate. This has required him to go through extensive painful lengthening surgeries. So far he has had 2 lengthening surgeries- his 1st surgery was when he was 5 years old, during this lengthening, his bone broke causing major complications and ultimatley resulted in him missing a full year of kindergarten. Only one can imagine how difficult this is for any child- both emotionally and academically. His latest surgery, he had to temporarily move to Florida for 6 months and once again miss out on fundamental childhood memories. Jayson just got home mid October and recently found out(through routine x- ray) that he needs go back down to Florida for another surgery to repair the "nonunion" of his new bone. His surgery is scheduled for January 20th,2015.
He has gained approx 4-6 cm of new bone growth with each surgery. During the process of lengthening, the femur bone is distracted in one millimeter increments per day. The standard care for a patient during the lengthening process is for the patient to receive a min. of 1 hour per day of Physical therapy five days per week and to continue to three days a week once lengthing is completed.
Jayson's insurance only covered him for 30 days of Physical therapy per calendar year. With his new setback he will continue to be partial weight bearing most likely for at least a year, resulting in continued Physical therapy for the remaining year. We have appealed the maximum amount of times that you can with his health insurance and getting our final denial letter a few weeks ago.
Please help Jayson continue his PT sessions. Patients who are non-compliant with rehabilitative therapy, or who cannot get adequate rehabilitative therapy, have the highest rate of complications, which often require additional unplanned surgery. We thank you in advance.
He has gained approx 4-6 cm of new bone growth with each surgery. During the process of lengthening, the femur bone is distracted in one millimeter increments per day. The standard care for a patient during the lengthening process is for the patient to receive a min. of 1 hour per day of Physical therapy five days per week and to continue to three days a week once lengthing is completed.
Jayson's insurance only covered him for 30 days of Physical therapy per calendar year. With his new setback he will continue to be partial weight bearing most likely for at least a year, resulting in continued Physical therapy for the remaining year. We have appealed the maximum amount of times that you can with his health insurance and getting our final denial letter a few weeks ago.
Please help Jayson continue his PT sessions. Patients who are non-compliant with rehabilitative therapy, or who cannot get adequate rehabilitative therapy, have the highest rate of complications, which often require additional unplanned surgery. We thank you in advance.
Organizer
Lori Rosen
Organizer
Wayne, NJ