Most of you that know my beautiful sister knows that she has recently been diagnosed with Chronic Lyme Disease. A disease that has been with her since birth. The road to diagnosis has been 37 years of pain, despair, heartache and frustration. She has been through countless tests and so many procedures that I think it would take up most of the space here to list them all. Most of the time it was doctors telling her it was in her head or treating her like she was a drug addict looking for her next score.
What is Chronic Lyme Disease you ask? Well there is not quick and straight forward answer but I would suggest if you want to educate yourself to look it up and read about it. What I can tell you is what this disease looks like to me and what it has taken away from my sister and her loved ones.
Lyme disease has been refrenced as "The Great Mimicker" as it takes on many forms. For some it looks like MS, Alzheimers, ALS, Chronic Fatigue Symdrome, Cancer and the list goes on. Hence all the tests. It hurts like you cant imagine. It takes away your ability to function. You are hurting all the time, you are extremely exhausted all the time yet cant sleep. Your life revolves around taking 20+ pills a day. Doing detoxing. And just generally feeling like you are dying (and that is not an exageration). This disease has not only done this to my sister but has worked its way into her brain. Her short term memory is non exsistant. Basically this disease is slowly trying its hardest to take her away from her loved ones.
There is no cure for Chronic Lyme but there are treatments and drugs to help. But nothing is covered by any type of health care plan because this disease is a huge cash cow for big Pharma.
So to add fuel to the fire my sister has recently become a single parent to her almost 3 year old daughter. She is unable to work due to this disease and has now got to support herself and her daughter on her own which to many is a normal everyday thing.
But here is where it gets tricky. Not only does she have everyday life expenses she has the cost of treatments. $200-$300 a month for meds, hundreds of all the supplents, $90 a doctor visit, tests for co infections can cost $500-$1000 each as Canada does not run any of these tests. Her doctor now wants to do shots that would probably do wonderful things for her but each shot is $90 and there would be multiple shots per week. Transportation to and from her mulitple doctors (one as far as a 2 hour drive eah way). Then there is the cost of food. Yes food. She can not eat dairy, gluten or sugar. So her monthly food bills for herself run $500-$750 a month! That does not include feeding her child.
Jayme isnt the type to ask for help. She would be the person helping. She is generous and kind and loves her family and friends. I am in awe of her drive and grace. I am asking for any help. Anything to get her the help she desperately needs to be there for her daughter. All donations will be GRATEFULLY received and it will all go towards getting her on her way to better health.