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Jayden's Wheels!

$2,692 of $55,000 goal

Raised by 34 people in 19 months
My son Jayden is a vibrant, happy, and loving 14 year old with cerebral palsy, which he was diagnosed with at about 2 years of age. He is non-verbal and he can't walk, and his ability to sit on his own is limited. He is completely reliant on others to go from place to place. Someone reached out to me asking if I'm open to financial help, and she offered to help me with a fundraiser, so here we are. Recently, a g-tube was placed in Jayden's abdomen, in hopes of helping him gain weight, and ot has been working!! Weight gain, while welcome, means even more toll on my back, and it means his safety and mine are further compromised whenever we travel. As Jayden's primary caregiver, I constantly struggle with transporting him. We have done a fundraiser before, and we were able to get a van, but it was older, wasn't accessible, and we have since had to scrap it due to constant repairs which were costing more than the van was worth. We use an Impala for transportation now, which means every time we go anywhere, I have to put Jayde in the vehicle, then disassemble the chair, and get it into the trunk. Then, when we get where we're going, we have to do everything in reverse.  The frequent disassembling and reassembling of his chair puts it at constant risk of breaking. Furthermore, the effort required for the whole process is incredible. My back is in constant pain, and I often find myself saying "no" to anything requiring travel so I can avoid the monumental difficulties of taking Jayden anywhere. I don't want either of us to be isolated, but combating isolation is hard when traveling is risky and draining. Medicaid can help with vehicle modifications in two ways: 1. They can pay to add after market modifications to an unmodified vehicle. 2. They can apply the cost of a conversion kit toward the total purchase price of a previously modified vehicle. I don't own a vehicle that can be modified for Jayden and I have been fighting Medicaid since June for a previously modified vehicle. Unfortunately, their policy limits which conversion items they will pay for on a previously modified vehicle. There are certain items we need such as a lowered floor that Medicaid won't pay for, despite the fact nearly ALL conversions kits come with one and despite the fact a wheelchair won't fit into a standard van without lowering the floor. We do not want to trade the Impala in, because we really need two vehicles. We have been making do with one, since my signficant other has a vehicle from his job, but it can only be used for job-related activities. If he's off while I'm working and needs to go anywhere, he is stuck.  He has two kids of his own, one of whom has a medical condition which could result in the need for immediate medical attention at any time. I never want to be in a position where one of our kids' needs can't be addressed because one of us is away with our one vehicle. Also, we owe more than it's worth, and we really don't want to go upside down with it, if that can be avoided. If we reach our goal, I can either buy a vehicle outright, or we can pay off the Impala and have money left to put a hefty down payment on a van that will meet our needs. Either scenario would be amazing and we'd be ever grateful!  Having safe, reliable, and accessible transportation would mean I could take Jayden anywhere without worry of hurting him, myself, or his chair.  It would mean maybe my back can last just a little bit longer. It would mean Jayden and I being able to participate in activities I might otherwise say "no" to. It would mean less isolation and more inclusion for Jayden. It would mean the entire world to us. 
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The hearing was a bust. Unfortunately, as I'd predicted, since they followed policy, there wasn't much else I could do. So, the fight to change policy continues.

At this point, my choices are to either buy an unmodified vehicle and request modifications, and pray they don't deny that too, wait and see if policy changes (if it does it'll most likely be in March 2019), or buy an older, already modified vehicle and hope it doesn't break down.

I haven't made a decision yet, but either way, any help you can provide would be greatly appreciated!! Thank you all do much!!!
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Good morning!

I received a call yesterday from an attorney for Medicaid.

I can't go into detail with my hearing pending... but I'll say this... I do feel that my concerns have been heard. what I don't know is if my concerns will be addressed and policy appropriately changed.

In case I'm NOT able to get policies changed to meet my needs (and the needs of so many others) I'll continue to fundraise.

As always, I appreciate you all for your support! Thank you!!!
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I have reached out to an organization called Help Hope Live. If my application is approved I'll be able to fundraise with them and they'll provide resources and support to do so.

I've also reached out to an organization that donates vehicles... so... say a prayer, cross your fingers, burn sage... whatever else you believe in to bring some good vibes this way is greatly appreciated!!

And one more thing.... I make and sell handmade jewelry and as long as I need the van, all sales from my jewelry will go toward the van, so hit me up on Facebook if you're interested!

Thank you everyone who has donated and/or shared. You're
all greatly appreciated!
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Good morning and happy Sunday!

Nothing much has changed, but I DO have a hearing date next month. In the meantime they are unable to answer my question as to WHY so many are covered on an unmodified compared to a previously
modified vehicle. Apparently,
because I'm in the midst of the appeals process, the answer is confidential at this time but may be revealed during the hearing process?

I don't get it either but I guess there IS an answer. As soon as I know, you all will know too! (Assuming I'm allowed to share such info lol).

As always, thank you ALL for your support!!
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$2,692 of $55,000 goal

Raised by 34 people in 19 months
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$20
Mark Beatty
9 months ago
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Alex von Dallwitz
9 months ago
$100
Anonymous
9 months ago
CV
$10
Cheryl Voronko
9 months ago
$25
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9 months ago
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$15
Patricia Nazzaro
9 months ago
$50
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9 months ago
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