LET'S MAKE LIFE BETTER FOR JAYDE WHO HAS ATAXIA
Donation protected
JAYDE AND THE LEYLAND FAMILY NEED YOUR HELP! (This is Jayde (LHS) and her elder sister, Jessica (RHS)) Ataxia-telangiectasia (AT) is a rare inherited condition that affects the nervous system, the immune system and other body systems. It is characterized by the presence of:
1. Progressive ataxia (lack of coordination) due to a defect in the cerebellum (the part of the brain involved in coordinating the movement of muscles)
2. Oculomotor apraxia (difficulty moving the eyes from side to side). Choreoathetosis (abnormal movements such as involuntary jerky movements of the arms, legs and face along with slow, writhing movements of the hands, feet and other body parts)
3. Telangiectasias (dilated blood vessels) on the whites of the eyes and the skin
4. Weakened immune system resulting in frequent infections Sensitivity to ionizing radiation
5. Increased risk to develop leukemia (cancer of blood-forming cells) and lymphoma (cancer of immune system cells) and some other cancers
“Imagine a disease that combines the impact of Cerebral Palsy, Cystic Fibrosis, AIDS, Cancer, and Muscular Dystrophy and you have Ataxia Telangiectasia,” ~Mom of 3 A-T kids
On May 10, 2018, our lives changed forever. Jayde was diagnosed with Ataxia Telangiectasia. What was supposed to be an appointment at Sick Kids to confirm Non-Progressive Cerebral Palsy, turned into the scariest diagnosis that we could never imagine. 
It has taken many months to adjust to some very drastic changes in our lives... Jayde will not be able to walk independently for much longer (there is no way to tell how long), her hand tremors will take away a majority of her independence, and her immune system will continue to decrease and cause her to become more isolated and dependant. Jayde will eventually need a feeding tube with specific immune boosting nutrition, and assisted breathing machines and tools.
Jayde can no longer manage to manipulate her manual wheelchair (she uses only when necessary right now), and she is living daily with fears that everything that ‘feels odd’ is the first signs of lymphoma or leukaemia. Jayde didn’t understand much about what was being said during our initial diagnosis appointment at Sick Kids, but she understood when we were told that she is eligible for a “Make a Wish”, that she was very possibly going to die.
So what do we do from here.... we make Jayde’s life as memorable (yet as normal) as possible:
1. Starting with an Eagle HD - PINK electric chair
2. Getting a vehicle that has a portable ramp, can accommodate an electric wheelchair, and be easier for Jayde to get in and out
3 Preparing to move into a bungalow that will need to be made accessible
4. Updating Jayde’s technology so she can use voice commands when her tremors are in control
5. Do some travelling with Jayde while she still has some independence, and her immune system is strong enough, while allowing her to save her “Make a Wish” for when she is ready to decide. 
(An Eagle HD - electric chair)
No donation is too small nor too much. As little as $5 can go a long way in helping her wish! Allow us to improve a life together as Jayde is counting on us alone!!!
Thank you as you donate,
Signed by Sherri, Jeff and Jessica Leyland (Jayde's family)
1. Progressive ataxia (lack of coordination) due to a defect in the cerebellum (the part of the brain involved in coordinating the movement of muscles)
2. Oculomotor apraxia (difficulty moving the eyes from side to side). Choreoathetosis (abnormal movements such as involuntary jerky movements of the arms, legs and face along with slow, writhing movements of the hands, feet and other body parts)
3. Telangiectasias (dilated blood vessels) on the whites of the eyes and the skin
4. Weakened immune system resulting in frequent infections Sensitivity to ionizing radiation
5. Increased risk to develop leukemia (cancer of blood-forming cells) and lymphoma (cancer of immune system cells) and some other cancers
“Imagine a disease that combines the impact of Cerebral Palsy, Cystic Fibrosis, AIDS, Cancer, and Muscular Dystrophy and you have Ataxia Telangiectasia,” ~Mom of 3 A-T kids On May 10, 2018, our lives changed forever. Jayde was diagnosed with Ataxia Telangiectasia. What was supposed to be an appointment at Sick Kids to confirm Non-Progressive Cerebral Palsy, turned into the scariest diagnosis that we could never imagine. 
It has taken many months to adjust to some very drastic changes in our lives... Jayde will not be able to walk independently for much longer (there is no way to tell how long), her hand tremors will take away a majority of her independence, and her immune system will continue to decrease and cause her to become more isolated and dependant. Jayde will eventually need a feeding tube with specific immune boosting nutrition, and assisted breathing machines and tools.
Jayde can no longer manage to manipulate her manual wheelchair (she uses only when necessary right now), and she is living daily with fears that everything that ‘feels odd’ is the first signs of lymphoma or leukaemia. Jayde didn’t understand much about what was being said during our initial diagnosis appointment at Sick Kids, but she understood when we were told that she is eligible for a “Make a Wish”, that she was very possibly going to die.
So what do we do from here.... we make Jayde’s life as memorable (yet as normal) as possible:
1. Starting with an Eagle HD - PINK electric chair
2. Getting a vehicle that has a portable ramp, can accommodate an electric wheelchair, and be easier for Jayde to get in and out
3 Preparing to move into a bungalow that will need to be made accessible
4. Updating Jayde’s technology so she can use voice commands when her tremors are in control
5. Do some travelling with Jayde while she still has some independence, and her immune system is strong enough, while allowing her to save her “Make a Wish” for when she is ready to decide. 
(An Eagle HD - electric chair)
No donation is too small nor too much. As little as $5 can go a long way in helping her wish! Allow us to improve a life together as Jayde is counting on us alone!!!
Thank you as you donate,
Signed by Sherri, Jeff and Jessica Leyland (Jayde's family)
Organizer and beneficiary
Sheila Brown
Organizer
Pickering, ON
Sherri Taylor-Leyland
Beneficiary