Jaxon's Journey to health

Jaxon just celebrated his first birthday.  He was diagnoised in-utero with gastroschesis.  What should have been a simple procedure, put his intestines back in his stomach, sew him up and send him home was greatly complicated when the stomach opening closed prior to birth, strangling his intestines leaving him with 30 cm of small intestines (this condition occurs 3 in a million births).  Your small intestines are where you absorb most or your nutrition and is vital to your immunte system.  Jaxon can eat by mouth but must have supplimental nutrition by IV to sustain him.   

Jaxon was discharged from the hospital July 14th, after spending 32 days in the hospital with what started as a simple virus.  He was released one day prior to his first birthday and we are grateful that he is home. 

Unfortunately his time in the hospital is increasing as he gets older instead of decreasing.  Jaxon has an appointment in Omaha, NB in August with their children's hospital which specializes in his condition.  The staff there told mom, Amber, to purchase a one way ticket.  At this time we don't know how long his stay will be.  The first week will be evaluation, if surgery is recommended that will take place also.  A STEP procedure is very likely.  It is a surgical procedure that would actually lengthen his intestines (there's actually a U-Tube video of the procedure if you want to learn more about it).  

Sick leave was used up long ago for mom and dad.  Daily household expenses will continue to acrue while Amber is in Nebraska and unable to work,  Dad, Antonio, must stay in FL to finish his schooling at the police academy.  The proceeds from this campaign will enable Amber and Jaxon to get to Nebraska, and get Jaxon the treatment he needs to stay healthy.