Jaxon Alan Archambeau
Donation protected
Jaxon was born on May 3rd via emergency c-section. They used what is called an exit procedure. Meaning that the doctors preformed surgery before he was completely delivered. They had found a fairly large tumor on the side of his face and neck that was constricting him from swallowing the fluids in the amniotic sac. This type of tumor is called Cervical teratoma. The doctors believe it to be benign but will not know until they remove it and test it. When planning the exit procedure they knew that he would need a tracheotomy to help him breathe. The doctors delivered Jaxon's head and one arm and shoulder then did the surgery for the tracheotomy. Then they delivered the rest. While no one knew about the teratoma until the day before, everyone knew there was a risk for Jaxon having Hemophilia B. Hemophilia B is when the affected person is missing, or has very low clotting factor 9 levels.
The tests came back positive for Jaxon having Hemophilia B. So that complicates matters a little bit.
On Tues May 9th Jaxon will have his trach removed and replaced with a plastic one so that the doctors are able to do a CT scan and an MRI. They need to know how and where this tumor is situated and what damage it has done to bone structures and organs in his face and neck area. They have been giving him a lot of his factor 9 in order to have his levels a little higher than normal before the surgery. We don't know when the removal will be done but they are trying to do it as soon as possible.
Everyone says that Jaxon is doing great! He has normal baby reactions such as moving and squirming (they actually had to restrain him so he wouldn't pull out his I.V's or trach lol). He's moving his tongue around in a sucking motion even though he is being fed through a tube in his nose right now. And he's pretty much breathing completely on his own. Which is excellent!! They have already removed 2 of his IV tubes because he is getting plenty of nutrition through his formula feedings. Yay!
We know that there is a very LONG way to go and a lifetime of dealing with the hemophilia, but we are sure this little man is gonna defeat any odds stacked against him.
The tests came back positive for Jaxon having Hemophilia B. So that complicates matters a little bit.
On Tues May 9th Jaxon will have his trach removed and replaced with a plastic one so that the doctors are able to do a CT scan and an MRI. They need to know how and where this tumor is situated and what damage it has done to bone structures and organs in his face and neck area. They have been giving him a lot of his factor 9 in order to have his levels a little higher than normal before the surgery. We don't know when the removal will be done but they are trying to do it as soon as possible.
Everyone says that Jaxon is doing great! He has normal baby reactions such as moving and squirming (they actually had to restrain him so he wouldn't pull out his I.V's or trach lol). He's moving his tongue around in a sucking motion even though he is being fed through a tube in his nose right now. And he's pretty much breathing completely on his own. Which is excellent!! They have already removed 2 of his IV tubes because he is getting plenty of nutrition through his formula feedings. Yay!
We know that there is a very LONG way to go and a lifetime of dealing with the hemophilia, but we are sure this little man is gonna defeat any odds stacked against him.
Organizer and beneficiary
Mandy Curry
Organizer
Cottage Grove, MN
Cody Archambeau
Beneficiary