We are currently waiting for insurance approval for a medication called Zolgensma which is incredibly expensive. Aside from that we are still navigating specialists and doctor appointments as well as trying to keep bills paid and our other 4 kids cared for while this journey has plans to take us all over our state. There is also talk of us being sent to Seattle where more specialists are available.
We have a long road ahead of us and are asking for help, times are hard but we are so grateful for any hand that is reached to us.
Thank you from the bottom of our hearts
- Teresa Leonard-Gilham
- Lily and Will Lee
- Sharol O'Brien
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