Jason Wright Medical Expenses
Donation protected
This is my cousin Jason! He and his family are having a medical crisis, this is the story from his wife. Please help if you can and thank for your support in advance!
My husband, Jason, has been diagnosed with an aggressive form of Systemic Sclerosis or Scleroderma (he has Diffuse Cutaneous Systemic Sclerosis... to be exact) with ALL the side effects it comes with... full body involvement..... It is a debilitating disease that takes away your independence and life as you know it. We started with our local physicians (all have been amazing) and our Cardiologist referred us to the Mayo Clinic in Jacksonville, FL. As he was treating symptoms and not the disease... So here we are. We are currently seeking treatment at Mayo.... Jason is getting STEMCELL TRANSPLANT.
A brief explanation of how that works... He gets injections of a medication to make his body grow and over grow, quickly, his own stem cells (up to 7 injections depending on growth). He does labs daily to monitor growth and how his body is reacting. He may need to take a day off of the Injections. After the first 4 shots, They then collect these virgin stem cells using a process similar to dialysis (so yes, he has to have a port put in). They count/measure to be sure enough has been collected, as they need ALOT. We repeat as needed, daily, until enough stem cells have been collected.
He will be admitted to the Mayo Clinic Hospital for treatment. We start with five (5) days of chemotherapy. (Not as heavy a dose as a cancer patient) to eradicate his immune system. Day 6, he gets his stem cells back. Treatment and Recovery is a long and difficult process and is not without its own dangers. We will be at Mayo/on property, up to 100 days. Out of pocket expenses are well over $20,000 already. This includes gas, hotel, food, co-pays, deductibles, past office visit balances... and we are just hitting the peak now.... Then we find out, insurance doesn't want to pay for the medication to grow the stem cells... and we've already started.... so now, we are in a battle... We are thankful for The Gabriel House of Care that is on campus. Please read about it here:
https://gabrielhouseofcare.org/ A brief explanation as per the Mayo Clinic website, on Scleroderma: Scleroderma (sklair-oh-DUR-muh), also known as systemic sclerosis, is a group of rare diseases that involve the hardening and tightening of the skin. It may also cause problems in the blood vessels, internal organs and digestive tract. Scleroderma is often categorized as "limited" or "diffuse," which refers only to the degree of skin involvement. Both types can involve any of the other vascular or organ problems. While there is no cure for scleroderma, treatments can ease symptoms, slow progression and improve quality of life. Symptoms: Skin-related signs and symptoms Raynaud's phenomenon Digestive problems Heart and lung problems Causes Scleroderma results from an overproduction and accumulation of collagen in body tissues. Collagen is a fibrous type of protein that makes up your body's connective tissues, including your skin. For more in depth details, flow this link to the page where I got the above abbreviated information:
https://www.mayoclinic.org/diseases-conditions/scleroderma/symptoms-causes/syc-20351952
Thank you, from the bottom of our hearts, for listening and sending love and prayers or donating. We appreciate it all. Much love, Charlene and Jason
My husband, Jason, has been diagnosed with an aggressive form of Systemic Sclerosis or Scleroderma (he has Diffuse Cutaneous Systemic Sclerosis... to be exact) with ALL the side effects it comes with... full body involvement..... It is a debilitating disease that takes away your independence and life as you know it. We started with our local physicians (all have been amazing) and our Cardiologist referred us to the Mayo Clinic in Jacksonville, FL. As he was treating symptoms and not the disease... So here we are. We are currently seeking treatment at Mayo.... Jason is getting STEMCELL TRANSPLANT.
A brief explanation of how that works... He gets injections of a medication to make his body grow and over grow, quickly, his own stem cells (up to 7 injections depending on growth). He does labs daily to monitor growth and how his body is reacting. He may need to take a day off of the Injections. After the first 4 shots, They then collect these virgin stem cells using a process similar to dialysis (so yes, he has to have a port put in). They count/measure to be sure enough has been collected, as they need ALOT. We repeat as needed, daily, until enough stem cells have been collected.
He will be admitted to the Mayo Clinic Hospital for treatment. We start with five (5) days of chemotherapy. (Not as heavy a dose as a cancer patient) to eradicate his immune system. Day 6, he gets his stem cells back. Treatment and Recovery is a long and difficult process and is not without its own dangers. We will be at Mayo/on property, up to 100 days. Out of pocket expenses are well over $20,000 already. This includes gas, hotel, food, co-pays, deductibles, past office visit balances... and we are just hitting the peak now.... Then we find out, insurance doesn't want to pay for the medication to grow the stem cells... and we've already started.... so now, we are in a battle... We are thankful for The Gabriel House of Care that is on campus. Please read about it here:
https://gabrielhouseofcare.org/ A brief explanation as per the Mayo Clinic website, on Scleroderma: Scleroderma (sklair-oh-DUR-muh), also known as systemic sclerosis, is a group of rare diseases that involve the hardening and tightening of the skin. It may also cause problems in the blood vessels, internal organs and digestive tract. Scleroderma is often categorized as "limited" or "diffuse," which refers only to the degree of skin involvement. Both types can involve any of the other vascular or organ problems. While there is no cure for scleroderma, treatments can ease symptoms, slow progression and improve quality of life. Symptoms: Skin-related signs and symptoms Raynaud's phenomenon Digestive problems Heart and lung problems Causes Scleroderma results from an overproduction and accumulation of collagen in body tissues. Collagen is a fibrous type of protein that makes up your body's connective tissues, including your skin. For more in depth details, flow this link to the page where I got the above abbreviated information:
https://www.mayoclinic.org/diseases-conditions/scleroderma/symptoms-causes/syc-20351952
Thank you, from the bottom of our hearts, for listening and sending love and prayers or donating. We appreciate it all. Much love, Charlene and Jason
Organizer and beneficiary
Nikki Morris
Organizer
Electra, FL
Charlene Wright
Beneficiary