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Jason Knobloch for his son Jaxton

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Hi my name is Justin Knobloch and

I am asking for any help and assistance anyone is able to provide to my brother, Jason, my sister in law, Jessica, and my little 4 year old
nephew, Jaxton.

They are all a very proud family and I would like to set this Go Fund Me account up on their behalf.

 

Due to a very large amount of foreseeable medical bills coming in and the loss of income their family is encountereing, any donation, no matter how small would be greatly appreciated!!

 

Our entire family has been devastated by the news of Jaxton going from a happy, always smiling, vivacious 4 year old, to having a "tummy ache"late one night, to being diagnosed with B Cell All Leukemia all within one weeks time.

 

When people say, always hug, kiss and tell your children how much you love them, DO IT, because you never know what the next morning will hold, life can change that dramatically overnight.

 

Written below, is what I asked my brother to write down containing the series of events his family had encountered during the week of
August 5th and what the future may hold for them.  Below is some of what they experienced during that time, not to mention the
unknown each and every day they have and will face.  Also, the stress they are going through when their little boy was
diagnosed with B-Cell All Leukemia,  and all the treatments that lie ahead of him for the next 2-3 years.  

 

As I have said, any little bit will help them deal with this traumatic, and life changing experience they are going through day by day.

 

Early last Friday morning (08/06), our son awoke in a great deal of stomach pain, and after a few hours of unsuccessfully trying to get him
feeling better and calmed down, it was clear to us something was wrong and that he should go to the E.R.

We basically figured the worst case would be that it was his appendix with the area in which he had the pain.

Once in the E.R. Friday morning, they ran their normal blood tests, did X-Rays, CT-scan and initially said he was constipated, but wanted to double check. Next, after getting blood work results they said he said some form of a viral infection later Friday afternoon. After further
reviewing his blood more closely, they noticed that his red and white blood cell and platelet counts were significantly lower than they should be.

At that point, the E.R. engaged St. Jude to basically look at the bloodwork and give their opinion. Late Friday evening, they wanted to run
more tests so we were told they wanted to perform a bone marrow biopsy and aspirate in addition to other tests Monday morning.

Their thought process was to start with what could be considered THE worst case scenario and go on down the line ruling them out one by one. In a general sense their order of ruling things out was:

Leukemia

Aplastic Anemia

Unknown viral infection

So Monday, August 9 Jaxton had a procedure done to extract a piece of his bone marrow as well as some of his bone marrow fluid (biopsy & aspiration) to look at the actual cells in an attempt to begin ruling out or identifying the problem in the order previously mentioned.
Monday evening St. Jude called to follow up with us and let us know they hadn't completed their analysis of the samples and we would hear something for sure early Tuesday.

Tuesday, August 10 we were visited by both his primary care doctor from the hospital plus 2 of the St. Jude oncologists to update us on
what they were able to see. At that point, we were told that he did in fact have leukemia and they were continuing to review to see exactly which type of leukemia it was (there are basically 3 main types).

At that point they informed us that they were arranging a patient transport from the hospital over to St. Jude and they should have
additional information on the type when we got there, so we started packing up the hospital room to move quickly.

We arrived at St. Jude same day (Tuesday, August 10), got into his room, met with the better part of 5 different groups on his
care/treatment team, at which point we were told his leukemia is called B-Cell ALL.

B-Cell ALL is very treatable and almost always can be cured with about 2 to 3 years of treatment, so we began the entire process last night with his oncologists and staff, and as I type this he is in his first procedure to have his port implanted into his chest among 3 other things.

First dose of chemo was Wednesday, August 11.

Jessica and I are doing alright, or what can be expected during this unbelievable encounter; it's a ton for anyone to go through in less than a week's time, but we're making it together and keeping him in good spirits. We have received loads of support from our families and are just looking forward to walking the road ahead so we can get our son back to 100% healthy and happy.

Needless to say, although St, Jude offers the best care in the world at no charge to patients or their families, we will be billed from the local children's hospital for the 4 nights/5 days spent there, plus countless labs, IVs (fluids and multiple rounds of antibiotics), plus 4 procedures performed.

Jaxton had a procedure in their ER, fully sedated with anesthesia in which they performed a bone marrow biopsy, as bone marrow aspirate (drawing the bone marrow fluid), spinal fluid draws, and the base of his spine being proactively treated with chemo just in case. Labs were
also drawn 4 times daily, meals delivered multiple times per day, IV fluids were always flowing, our son needed a blood transfusion, X-Rays, and a CT-Scan so we fully expect those bills to come in the very near future.

Needless to say, now that Jaxton has finally been released as an out-patient at St. Jude he will need to go to their campus an average of
3 to 4 days per week for what we have been told would be up to the next 6 months for chemo treatments. That said, with the amount of
appointments, check-ups, treatments, and procedures (surgeries) he will need over this course of time, Jessica will be unable to work the
majority of the time to be his primary care-giver attending the appointments.

She is in the process of applying for FMLA to cover her absences intermittently for the next several months, however any time she misses
via FMLA use for his appointments will also be unpaid, as Tennessee does not offer paid family leave, thus impacting our household income.

 

 

 

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    Organizer and beneficiary

    Justin Knobloch
    Organizer
    Buffalo, NY
    Jason Knobloch
    Beneficiary

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