Jarrah’s Journey with Ataxia Telangiectasia
Donation protected
All further donations will be greatly appreciated at Jarrah’s Journey via the official BrAshA-T website:
https://brashat.org.au/donate.php?sel_fundraiser_id=17&fbclid=IwAR0dDmmY-jIzZ0_iaUel7NXOhkf51NOkZy_8xgl0vUpWLFoySAWrbTXfpC8
JARRAH’S JOURNEY
At age two, Jarrah has recently been diagnosed with a very rare and incurable genetic neurodegenerative disorder called Ataxia Telangiectasia, also known as ‘AT’.
RAISING DONATIONS FOR BrAshA-T
All funds received at this difficult time will help support BrAshA-T research to find a cure and develop therapy and treatment for people living with AT.
www.brashat.org.au
Although Jarrah can’t thank you all personally himself, his family are incredibly overwhelmed and internally grateful for all of your kind words, wishes, support and donations. Together we can create awareness and help find a cure!
https://brashat.org.au/donate.php?sel_fundraiser_id=17&fbclid=IwAR0dDmmY-jIzZ0_iaUel7NXOhkf51NOkZy_8xgl0vUpWLFoySAWrbTXfpC8
JARRAH’S JOURNEY
At age two, Jarrah has recently been diagnosed with a very rare and incurable genetic neurodegenerative disorder called Ataxia Telangiectasia, also known as ‘AT’.
The symptoms of AT are best described as the worst parts of cerebral palsy, cystic fibrosis and muscular dystrophy, with a high risk of cancer and lung disease.
There is currently no cure for AT and Jarrah’s condition will slowly worsen over time.
As a family, surrounded by our supportive family, friends and community, we are dedicated to finding a cure for this condition, not only for Jarrah but for the other forty families in Australia that are on their own journeys with this condition.
RAISING DONATIONS FOR BrAshA-T
All funds received at this difficult time will help support BrAshA-T research to find a cure and develop therapy and treatment for people living with AT.
www.brashat.org.au
Although Jarrah can’t thank you all personally himself, his family are incredibly overwhelmed and internally grateful for all of your kind words, wishes, support and donations. Together we can create awareness and help find a cure!
Co-organizers (2)
Danielle Beveridge
Organizer
Victoria, VIC
Casey Beveridge
Beneficiary
Casey Beveridge
Co-organizer