Going vertical for PWS research

Jared Breneman is organising this fundraiser on behalf of Foundation For Prader-Willi Research Canada.

This July (2022), I will be climbing 18,000m in 2 weeks which equals double the height of Mt. Everest in July 2022. The elevation will be gained by foot, scramble, and mountain bike throughout B.C's incredible mountain ranges. Through this initiative, my goal is to raise $10,000 for the Foundation For Prader-Willi Research and their efforts to fund critical research for Prader-Willi Syndrome (PWS), a rare genetic disorder that my son, Koa, was born with.

While my 2-week journey will be difficult, it is small in comparison to the journey children and adults, living with PWS, have to take.

As the parents of a remarkable and inspiring child with PWS, we have decided to be as proactive as possible in helping to fund research for this challenging disorder. We believe that current research on PWS will provide new therapeutic options and will dramatically change the outlook that we were given for my son Koa.

What Is Prader-Willi Syndrome:

Prader-Willi syndrome is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS is recognized as the most common genetic cause of life-threatening childhood obesity. PWS is a complex and challenging disorder, but we have HOPE. With so many incredible research opportunities on the horizon, there has never been a more critical time to support this worthy cause.

About my journey:

The trip will be documented through our Adventures For Awareness Instagram page. All those interested will be able to view the daily challenges and incredible pursuits as I climb some of the world's most beautiful terrain over a 2 week period, with the aim of climbing an average of 1200m a day. I want to take action and be a part of this proactive community. I want my son to grow up and know that we have fought for him. Koa and all PWS children deserve a life with fewer obstacles, less pain and uncertainty, and more opportunities to live fulfilling lives. I know that this is possible, and I won’t rest until my son gets to live his best life.