Jane’s endometriosis recovery ❤️‍

Hi, my name is Amber. I am starting this fundraiser on behalf of my beautiful friend Jane. She has been struggling with endometriosis for 21 long years. Now a little back story on Jane. She is one of the strongest people I’ve ever met, and she took me in when I was 15 years of age, and has been one of biggest supporters ever since. She is the most beautiful, kind hearted woman you could ever meet. She has fought through this disease for way too long now. And we are finally able to get her some help after all this time. However, as everyone knows, medical bills are not cheap, especially surgery. Jane really hates asking for help, but she is family to me and deserves the world. So please, if you can only even slightly help, please assist me in raising money for this surgery that will be able to help Jane to get back to being her strong, bright, glowing and diligent self. 

This is Jane’s story

I have two wonderful girls with my amazing partner.

We run a small mowing business locally and I care for my 91 year old

grandmother full time as well.

I have suffered from

Endometriosis since I was roughly 12/13. I was diagnosed and had my first

surgery when I was 15/16.

Life has been a

challenge with Endometriosis and being in a regional rural area our health

system can only offer so much help.

My health has taken a

huge toll on my life for as long as I can remember. This disease now controls

and contradicts the whole part of my living. It controls what I can eat, how

energetic I can be, how long I can stand or walk, what I wear and basically

everything and anything in between.

I have had to advocate

for myself more than I ever should have had too. I have spent more times at the

hospital seeking pain management than I'd like to admit.

In 2018 I had a

laposcopy at the base hospital to maintain and look over the disease. I never

would have been able to predict the horror I was signing myself up to.

Surgery went well and

there was nothing crazy found during the surgery. But things started spiralling

out of control right in front of my eyes.

For 8 long months since

that surgery I became so ill and no one could ever prepare themselves for what

I was about to face.

Months and months went

by and my symptoms became so bad that I almost passed away.

I had a bacterial

infection that basically affected every organ inside of my stomach. The

infection started to mimic symptoms of menopause and it was horrendous to go

through. I would flood with blood just by picking up my phone. I was in so much

pain it was undesirable.

Eventually my front

wall tore away bit by bit and my bladder fell through stopping just before my

entry way of my vagina. I know have a cystocele bladder prolapse.

I began swelling so

badly that I no longer fit in any of my clothes. This was such a long rough few

months. And no one was taking me seriously. It was taking a huge toll on my

whole family. My partner would have to carry me from our bed to the bathroom, to

the lounge room. The internal inflammation became so bad that my left ovary

actually fused to my bowel and my bowel almost ruptured. I also had adhesions

throughout my abdomen sticking everything together.

With all of this

happening I presented myself to the ED so many times I swear they were sick of

seeing me. All I kept getting was I'm mentally unstable, I am constipated, I

need to change my diet, women have pain and bleed it's normal basically get

over it.

This was NOT normal.

Then the gynaecology department at the Base decided to put me on an injection

that actually puts you into a menopause state to see if my pain levels reduced

to prove I needed a hysterectomy. I jumped through every hoop, idea, suggestion

they gave me. I followed every step they asked me to try and we still were not

getting anywhere.

By this time I was in

such a dark place the pain and fatigue had gotten so bad I started to believe

my girls and family would be better off without me. I came close a couple of

times.

I paid good money to

speak and see private specialists in town and they just totally dismissed me

and said I wasn't their problem. That my issues were not as bad as I was saying

they were.

At a last resort I went

and spoke with Britney Laurga and told her what I had been going through and

she was appalled. She spoke with the health minister and within a couple of

days the hospital got in contact and offered me a second opinion option.

2020 came around and I

went in for my 3rd surgery. This basically confirmed my greatest fear but they

still never really rectified any of the issues internally.

They removed my ovary

off my bowel, the removed the adhesions and unstuck as much as they would. They

also diagnosed me with the prolapse. But they still never gave me an option for

a longer term fix. But they were happy to inform me that if I ever wanted more

children I would be on bed rest from start to finish and I could potentially

bleed out. But still won't give me a hysterectomy.

Fast forward to now,

2024. I am now 34, look like I am 6/7 months pregnant all the time. My life and

every day activities are still very much impacted and I've come a long way with

my pain but my bladder continues to fail. I am embarrassed to say I am

incontinent, I can't open my bowels without using medication.

I'm missing out on so

much before of my health issues and this is time I will never ever get back.

And the hard true and reality of this all is my daughters are watching this all

unfold. They themselves are going to have these gynaecology issues because it's

hereditary.

I reached out to an

amazing specialist in Brisbane Dr Andrew Orr. He is going to help me rectify my

health issues to the best of his ability. He has also set me up with an amazing

surgeon in Brisbane Dr Phillip Hall.

I am going to finally

get my quality of life back and start enjoying my day to day tasks. But with my

disease been left untreated for so long I have a very big road a head of me. I

have been diagnosed with roughly 12 conditions. Which included my Endometriosis

and Adenomiosis.

The medications I need

to start on start at $1,200. The surgery at a private hospital starts at

$15,000.00, the multiple appointments I have to attend, the visits to Brisbane

for pre surgery and post surgery costs are just adding up.