Following Jans passing on Thursday 19th February 2026.

We are raising money for Alex The leukodystrophy charity, who helped and supported our family through Jan’s diagnosis of late onset Alexandra’s disease, Jan’s illness of Alexander’s Disease is one of the rarest Leukodystrophies impacting approx. 1 in 20 Million people.

Details of Alexander’s disease can be found here https://alextlc.org/condition/alexander-disease/

We would be grateful if you would contribute financially towards their very important work supporting people with rare genetic leukodystrophy patients and their families.

More information about Alex, The Leukodystrophy Charity: Alex, The Leukodystrophy Charity (Alex TLC) is a small, independent rare disease charity competing for essential resources within an extremely competitive arena.

Like many other small charities, we have grown organically from an informal support group to the recognised voice for leukodystrophy patients and their families.

Leukodystrophies are a group of rare, genetic neurodegenerative disorders that can have a devastating impact on individuals and families.

Any Donations would be greatly appreciated by our family and Alex to help to continue their very important work.