Jamie's Chiari Story

I am Jamie-Eloise King, I'm 19 years old and for the last 9 years I have been suffering symptoms from a brain condition called Arnold Chiari Malformation Type 1. This is when part of my brain (the cerebellar tonsils) are too big for my skull so they drop through into my spinal canal. I suffer from debilitating headaches at the front and back of my head which have gradually got worse over the last 9 years. I also suffer from from nausea, vomiting, dizziness, numbness, sharp pains in my legs, spine, arms and head. My list of symptoms goes on. Here in the UK I have seen 4 Chiari neurosurgeons and a number of neurologists who have all dismissed my case and are not willing to help me. I have found a Chiari neurosurgeon in America who is willing to do surgery, this will mean having my cerebellar tonsils removed. If I don't have this surgery done, I will never feel better and my quality of life will worsen. To have this operation, I need to raise £150,000. I will be holding fundraising events and any donations made I will be very grateful for. I do have a Facebook page if anyone would like to read my story and be updated on my progress. 


Jamie-eloise King

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