Back in September my life flipped upside down. I woke up with Lesions, water blisters, scabs and red skin. I made it to a Dermatologist and he was able to diagnose the disease that has kept me out of work, away from my two children and having to plan for a tomorrow I can't even speak of. Asking for help is very difficult for me but I am desperate. I was originally diagnosed with Dermatomyositis. It is an Automimune disease that is very rare. It affects your Skin, Muscles and Lungs. I have lost 34lbs, my hair is thinning dramatically and my muscles are so weak I need a wheelchair to go any distance. My Rheumatologist and Pulmonologist confirmed the disease and believe I actually have an even rarer form of Dermatomyositis called MDA5 - DM. I have been scanned for Breast, Colon, Ovarian and Lung Cancer and I'm suprised I still have any blood left. In November I took a turn for the worse and was hospitalized for 10 days. Prednisone is my best friend since I am living on it. I was finally approved for Rituxan infusions and they start 12/22. Medicines are expensive. Because I am unable to work, I was approved as a hardship case.
You all know what it costs to live. My husband is disabled and does not work and I have been the primary earner in the family. I desparately need enough money to cover our rent and probably medical expenses and I'm reaching out to those of you who can help me. I am humbled and grateful for anything
*if you feel more comfortable donating via:
Venmo (@Jamie-Royer) or
Cash App ($jayRosaaay) pleas do so.
And again Thank You!!!

