Jameson's Journey
Donation protected
In June of this year, our sweet baby Jameson was diagnosed with rare genetic disease called hereditary chronic pancreatitis. For those of you who do not know what it is I have attached a link at the bottom. Since June we have had 5 separate hospital stays just to manage the severe pain he is constantly in. Statistics show there are only about 1000 people in the U.S. living with HCP. Currently there is no cure. Fortunately, we were lucky enough to find out about an amazing opportunity for a procedure that could alleviate most of his pain and give him the best chance at a normal life.
There is nothing more doctors here in Florida can do for him, so we have been referred to the University of Minnesota Children's Hospital in Minneapolis. They are the nations leading specialists for his condition and our only hope to find a better life for him. October 17 we will be leaving to head there for a 3 day evaluation where he will see surgeons, dieticians, endocrinologists, gastroenterologists, transplant coordinators and have tons of tests done.
We have created this page because we have had such an outpouring of people expressing their want to help. Although our insurance will cover all of his medical expenses, they do not cover travel, lodging, or the time we both are going to have to take off of work. Since this trip was arranged suddenly, we had no time to save for it as we are already struggling with Dr. bills and medications on a normal basis now.
If Jameson is approved for this procedure he would be the youngest person in history to have it done and a whole new level of research towards a cure will go with it. If you would like to help make this possible for our family, thank you in advance. We would also like to thank everyone for reaching out and encouraging us to start this page for Jameson. Your prayers have gotten us through many sleepless and hopeless nights and there is nothing more we appreciate than that.
www.thepancreasfoundation.org
There is nothing more doctors here in Florida can do for him, so we have been referred to the University of Minnesota Children's Hospital in Minneapolis. They are the nations leading specialists for his condition and our only hope to find a better life for him. October 17 we will be leaving to head there for a 3 day evaluation where he will see surgeons, dieticians, endocrinologists, gastroenterologists, transplant coordinators and have tons of tests done.
We have created this page because we have had such an outpouring of people expressing their want to help. Although our insurance will cover all of his medical expenses, they do not cover travel, lodging, or the time we both are going to have to take off of work. Since this trip was arranged suddenly, we had no time to save for it as we are already struggling with Dr. bills and medications on a normal basis now.
If Jameson is approved for this procedure he would be the youngest person in history to have it done and a whole new level of research towards a cure will go with it. If you would like to help make this possible for our family, thank you in advance. We would also like to thank everyone for reaching out and encouraging us to start this page for Jameson. Your prayers have gotten us through many sleepless and hopeless nights and there is nothing more we appreciate than that.
www.thepancreasfoundation.org
Organizer and beneficiary
Colette Brown
Organizer
Saint Cloud, FL
Kevin Brown
Beneficiary