Jameson's Journey: Hope for Healing

Let me first start by saying thank you for taking to time read this story. My name is Jamie and my son, Jameson, is who this gofundme is for. Jameson was born 06/24/2022. He was diagnosed at 2 months old with a birth defect known as “Biliary Atresia”. In his case, his form of atresia was very severe and its only treatment option was to receive a liver transplant. At 11 months old and on Mothers Day May 14th, 2023, Jameson received his new liver. It was bitter sweet in the sense that his donor liver was a “whole” liver, meaning it came from a child his age and size. I think about that child and those parents at least once everyday. I’m just now writing a letter to the donors parents. Jameson received his liver but had an extremely rough time with recovery. Now, almost 2 years later, his new liver is doing great. However, Jameson cannot walk or talk despite trying. He will be 3 in June of this year. He has been diagnosed with global developmental delay and level 3 autism. He received genetic testing and it was discovered that Jameson has a POLG gene mutation that affects mitochondrial dna replication. It is extremely rare as he is the only one with his specific variant. This mutation results in mitochondrial disease and dysfunction. The brain and muscles are what are most affected because they require the most energy. It’s believed that the liver transplant was the trigger that set off his regression and the symptoms related to mitochondrial disease. Unfortunately, there is not a cure for this genetic mutation but there are some therapies and clinical trials that show promise. One of them is hyperbaric oxygen chamber treatment. There is also a clinical trial in Canada that looks promising. Jameson will also have to travel to Ohio to see a doctor that specializes in Mitochondrial disease genetics because of of the complexity of his variant. Sadly, because we live in Georgia, Jameson’s health insurance does not cover medical expenses in Ohio. Additionally, hyperbaric oxygen therapy treatments are not covered by insurance for Jameson’s condition as it is considered an “alternative” treatment; but it is the treatment that shows the most promise for Jameson. So much so, that we are really trying to raise money to buy him a chamber for home use. Jameson has been through so much, but is still the happiest little boy. ❤️ Everyone that meets Jameson can feel the warmth and innocence he radiates. He is a fighter. After the liver transplant we didn’t know if he would make it to be honest. He had so many prayer warriors. Everytime he was on the brink of something being horribly wrong he would be pulled back from the edge. I like to think that Jameson was also looked after by that sweet angel whose liver he carries with him. I hope to be able to truly convey to those parents just how much their selfless act of donation meant. It saved my sons life. A life that I intend on giving the best chances and opportunity. I owe it to those parents. I owe it to that child whose life was tragically cut short. So here I am, humbly asking for help. My pride doesn’t matter. It never has when it comes to Jameson. He did not come all this way to not be able to walk or talk. Any amount, even $1, would help. No amount is too small. Even if you can’t donate, if you could possibly say a prayer for Jameson or if you’re not religious, direct some good energy his way and share this link it would mean so much. I hope one day to help others as they have helped my son and I. Thank you so much and God bless.