Join Jameson's Fight Against Cancer
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Jon and I are currently facing the biggest battle I'm sure (I hope) we'll ever have to fight. Our precious 4 month old baby, our youngest son, Jameson, has been diagnosed with stage 4 Neuroblastoma.
-What is Neuroblastoma?
Most people have never heard of neuroblastoma, but it's actually the most common type of cancer in infants.
In this rare disease, a solid tumor (a lump or mass caused by uncontrolled or abnormal cell growth) is formed by special nerve cells called neuroblasts. Normally, these immature cells grow into functioning nerve cells. But in neuroblastoma, they become cancer cells instead.-
(kidshealth.org)
This has come as nothing short of a shock to us. Jameson has always been such a happy, easy baby. The EASIEST of our three for sure. He's always calm and content. He never presented any signs of anything being wrong. The only indicator I, as his mom, saw was a big tummy. And he's our chunky boy! But about a week before his 4 month check up (Oct. 4th), I started to wonder if maybe it was too big. I addressed this concern with our pediatrician at his check up and it was there after an x-ray we discovered his liver and spleen were enlarged, very enlarged. He had an ultrasound of his abdomen done the next morning and it was from that ultrasound that we discovered Jameson has three very large masses in his belly and they are cancer. This was beyond shocking and devastating news. Every parent's worst nightmare. We have been admitted to Children's hospital in Omaha since Monday morning. An MRI revealed his liver is currently taking up approximately 80% of his abdomen. We began our first round of chemo last night (Oct. 11th) and have a long road ahead of us. We need to shrink these tumors and chemo is our only option at this point. It is so hard watching my tiny baby's body be pumped full of this. I would take his place in a minute. I want to take all of this away from him, and it's killing me that I can't.
I would give anything to not be in the situation we are right now. We have 3 kids Jonathan (7) Regan (4) and our baby boy Jameson. Our daughter, Regan, has many special medical needs herself. She survived a stroke in utero and has left Hemiplegic Cerebral Palsy. She needs orthotics, glasses, weekly therapies, specialty doctor visits. She has an amazing life and is such a hard worker because of all of this. We only have private insurance through my husband's work, and while he gets great coverage, the financial burden of her needs alone is heavy. I am currently a SAHM with plenty to do between taking care of Jameson, getting the older two to and from school and activities, doing all of Regan's appointments and therapies, taking care of our home, etc. So we are a one income family. And while we have been getting by just fine, Jameson's diagnosis has been absolutely devastating in every way imaginable, including financially.
We have had many people who love our family and want to support us during this time, ask how they can help. That is why I'm here, asking for help. We need positive thoughts, prayers, healing vibes for Jameson. As well as thoughts, and prayers for his brother Jonathan and his sister Regan. And we also need any financial help available at the moment. Jon has had to take more time off than expected even in just this first week of treatment to not only take care of our oldest two, and keep them in their normal routine, but also to come to the hospital to be educated on everything that goes into caring for a baby going through chemotherapy. (Which is a lot.)
We are forever grateful for the support system we are blessed with. We are surrounded by people who truly love and care about us and we need it now more than ever, and will never forget how loved we are. If you aren't able to give, please share our story and keep our family in your thoughts. ❤️ Thank you so much.
https://facebook.com/teamjamesoncamp
-What is Neuroblastoma?
Most people have never heard of neuroblastoma, but it's actually the most common type of cancer in infants.
In this rare disease, a solid tumor (a lump or mass caused by uncontrolled or abnormal cell growth) is formed by special nerve cells called neuroblasts. Normally, these immature cells grow into functioning nerve cells. But in neuroblastoma, they become cancer cells instead.-
(kidshealth.org)
This has come as nothing short of a shock to us. Jameson has always been such a happy, easy baby. The EASIEST of our three for sure. He's always calm and content. He never presented any signs of anything being wrong. The only indicator I, as his mom, saw was a big tummy. And he's our chunky boy! But about a week before his 4 month check up (Oct. 4th), I started to wonder if maybe it was too big. I addressed this concern with our pediatrician at his check up and it was there after an x-ray we discovered his liver and spleen were enlarged, very enlarged. He had an ultrasound of his abdomen done the next morning and it was from that ultrasound that we discovered Jameson has three very large masses in his belly and they are cancer. This was beyond shocking and devastating news. Every parent's worst nightmare. We have been admitted to Children's hospital in Omaha since Monday morning. An MRI revealed his liver is currently taking up approximately 80% of his abdomen. We began our first round of chemo last night (Oct. 11th) and have a long road ahead of us. We need to shrink these tumors and chemo is our only option at this point. It is so hard watching my tiny baby's body be pumped full of this. I would take his place in a minute. I want to take all of this away from him, and it's killing me that I can't.
I would give anything to not be in the situation we are right now. We have 3 kids Jonathan (7) Regan (4) and our baby boy Jameson. Our daughter, Regan, has many special medical needs herself. She survived a stroke in utero and has left Hemiplegic Cerebral Palsy. She needs orthotics, glasses, weekly therapies, specialty doctor visits. She has an amazing life and is such a hard worker because of all of this. We only have private insurance through my husband's work, and while he gets great coverage, the financial burden of her needs alone is heavy. I am currently a SAHM with plenty to do between taking care of Jameson, getting the older two to and from school and activities, doing all of Regan's appointments and therapies, taking care of our home, etc. So we are a one income family. And while we have been getting by just fine, Jameson's diagnosis has been absolutely devastating in every way imaginable, including financially.
We have had many people who love our family and want to support us during this time, ask how they can help. That is why I'm here, asking for help. We need positive thoughts, prayers, healing vibes for Jameson. As well as thoughts, and prayers for his brother Jonathan and his sister Regan. And we also need any financial help available at the moment. Jon has had to take more time off than expected even in just this first week of treatment to not only take care of our oldest two, and keep them in their normal routine, but also to come to the hospital to be educated on everything that goes into caring for a baby going through chemotherapy. (Which is a lot.)
We are forever grateful for the support system we are blessed with. We are surrounded by people who truly love and care about us and we need it now more than ever, and will never forget how loved we are. If you aren't able to give, please share our story and keep our family in your thoughts. ❤️ Thank you so much.
https://facebook.com/teamjamesoncamp
Organizer
Rachel Camp
Organizer
Council Bluffs, IA