Jake is our only child and means the world to us. He was a healthy 11 year old, 6th grader who started having symptoms of a cold. He lost his appetite towards the end of August and we thought it was from pre-teen growing spurts. On September 18th I took him to be checked out by his doctor and she recommended we get an x-ray. From there that afternoon it has been a whirl-wind for us.
Jake was admitted that evening to the PICU in Children’s Mercy Hospital in Kansas City, Missouri thinking it was pneumonia and fluid around chest and abdomen. He had CT scan, Ultrasounds, and EKG done to figure out what was causing everything. They moved us out of the PICU and into another room thinking he was progressing. But things took a turn and we were moved back to the PICU. The diagnoses came back that it was actually cancer.
When they moved Jake back to the PICU, they immediately put in chest tubes on both sides to drain the fluid in his body. The doctors and hospital staff have been fabulous with helping us cope during this stressful time.
The prognosis is Stage 3 Burkitt Lymphoma – Non-Hodgkin’s. The doctors are very hopeful they have caught this now and have given us hope for a cure.
Jake was moved out of the PICU and up to the oncology floor Monday night. The medicines and chemo had him a little grouchy and agitated. Blood pressure were elevated and caused his body to react. Jake had 3 seizures in a short period, and one more later that evening. As parents who have never experienced seizures it was pretty scary to witness. Luckily we are surrounded by a wonderful team of doctors, nurses and our family.
On Tuesday, September 25th, Jake was moved back to the PICU for 2 days to get his body all lined out. We are now back on the oncology floor and he is doing so much better. They started the 2ndround of chemo and have precautions ready for future issues. We are hopeful and praying that Jake is on the right track and will be back home and able to go to school soon to see his friends.
Kyle and I are missing work to be with Jake during this process. We are helping him move around with the chest tubes and wires connected to his body. They expect the tubes to come out soon. Any support you can give us will be greatly appreciated and cherished from the Winkler’s. And our families: Gosoroski’s, Pierce’s, Vaughn’s and Winkler’s.
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