Jake Clayton Medical Funds

I created this Go Fund Me to help Jake Clayton with upcoming medical expenses. I am a friend and teaching partner of Shannon Clayton, Jake's mother. Jake is a Platteview graduate and Shannon is a Platteview teacher.   PLEASE FEEL FREE TO SHARE this info with anyone who knows Jake or the Clayton family.  

Jake, who is only  23 years old, has been struggling with lower back pain and sciatica for almost two years. Despite many treatments such as physical therapy, pain medication, and steroid shots, he was unable to find relief. A year ago, he had an MRI that did not show anything; however, his latest one shows that he has two cysts growing from the L1 nerve root. This type of cyst is called a perineural or Tarlov cyst. While the cysts themselves are not uncommon - a lot of people are born with them - only 1% of those who have them will become symptomatic. In addition to intense sciatic nerve pain, these people can suffer permanent nerve damage resulting in an inability to empty their bladder, bowel dysfunction, impotence, and paralysis.

 

As mentioned above, this is a very rare disease. Jake has been to two neurosurgeons in Omaha, but they are inexperienced with Tarlov cysts and because of the risks involved, they are not able to help him. After doing some research, the family found The Tarlov Cyst Foundation  (click for more information) in Knoxville, Tn. According to information from their website, there are only three neurosurgeons in the US that specialize in Tarlov cyst treatment. Jake has decided to pursue treatment with Dr. Frank Feigenbaum in Dallas, TX. As a specialist, Dr. Feigenbaum is highly respected for developing a treatment that maximizes patient recovery - approximately 80% of his patients are completely relieved of their symptoms. Jake is on a nerve-blocker - not something you want longer-term, but it's taking the sting out of his pain at this time. It is uncommon for these cysts to rupture; however, they will continue to fill with cerebrospinal fluid causing more pressure on the nerve root. The longer he goes without intervention, the greater the risk of permanent nerve damage.

 

First of all, the family is asking that you keep Jake in your prayers as he faces this overwhelming challenge. Pray that his faith in the Lord is strengthened and that God is glorified throughout his treatment. As you would imagine, there is a huge financial burden associated with this disease. In addition to significant medical expenses, Jake will have travel expenses. He'll need to go to Dallas for his consultation, then again for surgery. He will also have a long recovery time during which he won't be able to work. Jake owns his own home and will need help making his mortgage and car payments during the recovery period.