Jaden's Nerve Transfer Surgery
Donation protected
A year ago my now 18 year-old daughter Jaden was diagnosed with AFM (Acute Flacid Myelitis) on April 11, 2018. She was perfectly normal. Had minor back pain and within an hour and a half was paralyzed from her neck down and not breathing. She was on life support for 34 days at Phoenix Childrens Hospital then we were at Barrow Neurological inpatient rehab for another 39 days. She has been so strong and even managed to graduate from high school 4 months early online.
Today a year and 3 months later she is still unable to stand alone or walk. She does have almost full use of her left arm and left leg. Her right side is slower to move and become as strong. Although, she can wiggle fingers and toes on the right side.
We have the opportunity to fly to St Louis and be seen by Dr Amy Moore (Reconstructive Surgery. Dr. Moore specializes in hand and upper extremity surgery, with a focus on complex wrist/peripheral nerve injuries and brachial plexus injuries in adults, infants and children) for a consultation to hopefully be a candidate for nerve transfer surgery.
They would take strong nerves from her left side and transplant them to the right side. We are very excited that they have reviewed her medical records and are willing to see us. The financial effect of all this travel will be difficult but we are willing to do anything to get our daughter back to her happy normal self again as soon as possible. She has endured more than any of us can fathom.
If after the consultation on August 9th she is able to receive the nerve transfer surgery, we will have to schedule and fly back to St Louis and stay in a hotel for the duration of the surgery until she is strong enough to fly home to Peoria, Az.
We have not asked for anything since this has happened to Jaden but now is the time we are in need. The funds will be used for all the travel flights, hotel room etc for the two round trips to and from St Louis MO and whatever the insurance will not cover. Please pray for Jadens recovery. If it is Gods will for her to receive this nerve transfer surgery than it will BE. We have faith for our daughter Jaden. Thank you. Tanya Mucci and Randy Hosler.
Today a year and 3 months later she is still unable to stand alone or walk. She does have almost full use of her left arm and left leg. Her right side is slower to move and become as strong. Although, she can wiggle fingers and toes on the right side.
We have the opportunity to fly to St Louis and be seen by Dr Amy Moore (Reconstructive Surgery. Dr. Moore specializes in hand and upper extremity surgery, with a focus on complex wrist/peripheral nerve injuries and brachial plexus injuries in adults, infants and children) for a consultation to hopefully be a candidate for nerve transfer surgery.
They would take strong nerves from her left side and transplant them to the right side. We are very excited that they have reviewed her medical records and are willing to see us. The financial effect of all this travel will be difficult but we are willing to do anything to get our daughter back to her happy normal self again as soon as possible. She has endured more than any of us can fathom.
If after the consultation on August 9th she is able to receive the nerve transfer surgery, we will have to schedule and fly back to St Louis and stay in a hotel for the duration of the surgery until she is strong enough to fly home to Peoria, Az.
We have not asked for anything since this has happened to Jaden but now is the time we are in need. The funds will be used for all the travel flights, hotel room etc for the two round trips to and from St Louis MO and whatever the insurance will not cover. Please pray for Jadens recovery. If it is Gods will for her to receive this nerve transfer surgery than it will BE. We have faith for our daughter Jaden. Thank you. Tanya Mucci and Randy Hosler.
Organizer
Tanya Glenn Mucci
Organizer
Peoria, AZ