Jack’s Brave Steps: Beating Duchenne Together

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£120 raised of £10K

Jack’s Brave Steps: Beating Duchenne Together

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On the 14th October, our world changed forever. Our beautiful little boy, Jack, just 4 years old, was diagnosed with Duchenne Muscular Dystrophy (DMD) a rare and devastating genetic condition that causes progressive muscle weakness.

DMD gradually damages the muscles over time, meaning children like Jack will lose the ability to run, jump, and eventually walk, often by their early teenage years. As the condition progresses, it also affects the heart and lungs. There is currently no cure.

We are already seeing the impact this cruel disease is having on Jack. He struggles with walking, his strength is fading, and he experiences pain no child should have to endure. Knowing what lies ahead for him is something no family can ever truly prepare for.

But we refuse to stand still.

As a family, we are doing everything we can to fight for Jack - to raise awareness, fund vital research, and give him the best opportunities and memories while we can. We are organising sponsored walks through Knowl Hill and Cheesden Valley, across the Rochdale and Bury areas, pushing ourselves step by step for a cause that means everything to us. In addition, an incredibly brave family member will be taking on a skydive this year, dedicating every penny raised to this fight.

Every donation brings hope, hope for treatments, hope for a cure, and hope that Jack’s future can be brighter than what this disease threatens to take away.

Please support us, walk with us, share our story, and help us give Jack the life he deserves.

Together, we can make a difference. Please help me save my little boy. Xx

Small feet walking, trying so strong,
In a world where he doesn’t belong to this wrong.
Each step a battle, each day a fight,
Still he smiles with all his might.

Time moves fast, too fast, unfair,
A future uncertain, heavy to bear.
But love stands louder than fear or lack,
We walk together - to save our Jack.

Organizer

Duchenne UK
Beneficiary
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