10/15/2014 It's time to update all our friends and family to what we are going thru. We have had a lot of concerned people asking me privately what's going on with Jack and since I know in my heart God has a plan and everything is going to be ok it's time to share. I went for a sonogram about 3 weeks ago and found out Jack has Vein of Galen AVM (Brain aneurysm )and will be treated by Dr. Alex Berenstein in NY. A world renown brain surgeon. He is # 1 at this malformation treatment and we only want the best.We flew up today to treat baby in utero. With a heart medication to prevent heart failure after delivery. I will be delivering 10/20 by mount Sinai hospital NY high risk OBGYN were Jack will be monitored by the cardiologist and neuro team carefully. This is a very rare malformation 1 in 285,000 babies get this and this statistic isn't that accurate bc most of the time it's not detected until too late.It's not hereditary it just happens. Please pray for our angel baby and for our sanity thru all this. We are still in utter shock this is happening and just know he will be ok. (The aneurysm can cause heart failure due to the force of blood from the AVM back to the heart ) that's why they treat me with heart meds to prepare him after delivery...

10/20/2014: Jack Robert Giaquinto was born.




Update 10/22/2014: We are doing ok everything with Jack is pretty good until last night his breathing has become heavy which is something they need to monitor. Looks like we will be here a little longer. If breathing doesn't become more stable would need to stay on a feeding tube. We are praying that doesn't happen! Everyone please pray for this angel baby! People say I'm strong well this baby has already proven he is what inner strength is all about!




Update 10/25/2014: we couldn't be happier to say that Jack has been cleared of all his tubes!!!! I expect to see him being discharged mid next week. We will need to stay for a few days after to just see how he is in the "real world" then home! He didn't have the embolization ( the treatment of the aneurysm in the brain) yet. The neuro team feels that the best results are when babies are bigger so the first treatment will be around 6 months. In the mean time Jack will be monitored closely at home with frequent visits to the pediatric cardiologist and neurologist to monitor the malformation. There will be some bumps in the road until then but we will safely make it to the finish line! I just know it!!!!





Update 10/29/2014: Today will never be forgotten we are taking our angel baby home! Good bye hospital see you in 6 months!




Update 3/21/2015:  I shared with you all that Jack was born with a very rare malformation in his brain. Called vein of Galen malformation and that's why we delivered in NY. He was acting off this week and we thought he may have caught the bug from his sister Gigi bc he threw up on Monday fine until today and threw up again. Acting not like himself we decided to bring him to the ER. When we got there he had 2 seizers and had to get airlifted to Joe DiMaggio. In the meantime they took a CAT scan and they saw something suspicious. He may have a brain bleed we are at joe now and just finished over an hour MRI. Should know what's truly going on soon! My beautiful peaceful baby boy is going they so much it is ripping my heart to pieces!!! Please PLEASE say a prayer or two for my baby angel!!!