Meet Jack. He is so sweet, happy and laughs a lot. He was born with a rare neurological disorder that is yet to be specifically diagnosed but makes it so he is unable to walk or talk. Jack's specialists have ruled out the top 200 syndromes and are at a loss. They believe Jack has something very rare and without a genetic testing to test his genes, we may never learn of his condition. Insurance has denied us twice already for this testing so we are asking for help.

Jack completed our family of four in June of 2013. He had a rough start in life and spent 7 days in the NICU after aspirating fluid. He was on a breathing and feeding tube the first several days of life. He was slow to gain weight and had a hard time eating. After bringing him home, he didn't gain much weight. I saw a feeding specialist and explored all different kinds of feeding methods (bottle feeding, cup feeding, straw feeding, finger feeding, syringe feeding, you name it, I tried it). We took him to a gastroenterologist, a cardiologist, and after not meeting milestones, a neurologist and a geneticist. Jack frequents Valley Children's Hospital in Madera, Ca. After a perfect MRI of his brain and several blood tests, the specialsts still do not know what Jack has. 
They urge him to get a genetic test that will test 20,000 genes in his body, however, it is very costly. Unfortunately, our insurance has labeled this as explorative testing and continues to deny us the funds.
Jack sees three therapists on a weekly basis: speech therapy, physical therapy, and overall development including fine motor therapy. With his team behind him, he has made such huge progress but we still have a long way to go.

As a mom and dad, we want what is best for our children. I dream of the day Jack can walk and talk with us; to communicate his wants and needs in life. I am so thankful for Jack and his sweet little soul. 

Prayers are always welcome!!!