JACE WARD - TOUGH2GETHER
Donation protected
Standing TOUGH2GETHER with Jace Ward as he battles DIPG and LIVES everyday.
What is DIPG? How did this happen?
No one knows the cause of this monster. DIPG is an aggressive, inoperable, currently uncurable cancer within the pons area of the brain stem. It kills the most children by disease each year. As parents we prepare our children for many things, but there is simply NOTHING that prepares you to watch your son, full of joy for his life's next steps, to take in the news that he has 9 months to live. In true fashion, Jace responded without one tear, "Doctor, I'm not afraid of dying, I'm afraid of not making an impact with the time I have left." And then, Jace determined to accept the news, beat the odds, give God all credit and LIVE every day. We're standing Tough2gether with Jace.
How can you help?
Admittedly, our family is uncomfortable receiving. We would so much rather be on the giving end. We've waited a couple months to learn better the extent of coming expenses we aren't prepared to absorb. We've been humbled kindness and prayers for Jace and our whole family. I can see the strength in Jace as he realizes he is not alone. Tough2gether we'll support Jace's clinical trial expenses, adaptive technology and supplemental treatment. Jace would also like to support new trials in this cancer!
Who is Jace?
Jace is a tough guy, with a great smile, quick humor and good heart. Jace grew up in Inman, KS and moved to Wamego, KS prior to his 6th grade year in 2010. He was a tough contender on the football field wearing number 2 and participated in other sports and activities throughout high school. In high school, he loved helping as a peer tutor in a special needs classroom. He graduated in 2017. Jace finished his Junior year at KSU during his treatment for DIPG. He now starts is final year needed to graduate with a degree in business with prelaw emphasis. Jace loves good friends, good times, and a good debate. He's generally easy going, but man is he stubborn when working towards something. He's going to give cancer a dang good fight!
Jace worked to overcome right side weakness in his walk and fine motor skills, left eye double vision, left facial numbness and the feeling his right leg is always freezing. He endured 30 rounds of radiation and started a clinical trial called ONC201 in September 2019. Jace has traveled often during this year speaking to Congress, the NIH, NCI, at fundraising gala events and on social media to increase awareness of DIPG and to open paths of funding for more research an drug access.
We're a close family. We're his parents, Roger and Lisa Ward. We grew up in Wamego and work in Manhattan. Jace’s brother Blake and wife Lauren Ward live in Overland Park. His sister Brooke Ward is a KSU Cheerleader majoring in Psychology/Business. On behalf of Jace and our familiy, thank you for your prayers, good wishes and support.
What's Next?
We don't know what the future brings, but we DO know WHO holds the future. Jace's tumor is responding to treatment. It has remained stable this year. We are looking for the next treatment in the event ONC201 should no longer be able to hold his tumor. Thank you, thank you for your continued prayers and support. We've got a battle!...but one Jace has shown great resilence to conquer.
We thank the Musella Foundation and the Dragon Masters Foundation for advocating for Jace's care and inclusion in the trial/expanded use. These foundations fund the ONC201 trial and others like them. We must continue to support their work in order for 300-500 young people with DIPG in the US each year to have the chance to live. Jace is giving back to the foundations that fund these trials by helping with a project to advance the awareness of high grade gliomas in young adults. He is sharing his medical information with researchers. He reaches out through fun video chats to kids with DIPG to bring them hope and strength. If you would like to support Jace's expenses or more research -- thank you!
With you, we truly are Tough2gether for Jace. You are amazing!
Our love to you,
Jace and his family
**If you would like a bracelet(s) when donating, kindly comment or send a FB message with your address
What is DIPG? How did this happen?
No one knows the cause of this monster. DIPG is an aggressive, inoperable, currently uncurable cancer within the pons area of the brain stem. It kills the most children by disease each year. As parents we prepare our children for many things, but there is simply NOTHING that prepares you to watch your son, full of joy for his life's next steps, to take in the news that he has 9 months to live. In true fashion, Jace responded without one tear, "Doctor, I'm not afraid of dying, I'm afraid of not making an impact with the time I have left." And then, Jace determined to accept the news, beat the odds, give God all credit and LIVE every day. We're standing Tough2gether with Jace.
How can you help?
Admittedly, our family is uncomfortable receiving. We would so much rather be on the giving end. We've waited a couple months to learn better the extent of coming expenses we aren't prepared to absorb. We've been humbled kindness and prayers for Jace and our whole family. I can see the strength in Jace as he realizes he is not alone. Tough2gether we'll support Jace's clinical trial expenses, adaptive technology and supplemental treatment. Jace would also like to support new trials in this cancer!
Who is Jace?
Jace is a tough guy, with a great smile, quick humor and good heart. Jace grew up in Inman, KS and moved to Wamego, KS prior to his 6th grade year in 2010. He was a tough contender on the football field wearing number 2 and participated in other sports and activities throughout high school. In high school, he loved helping as a peer tutor in a special needs classroom. He graduated in 2017. Jace finished his Junior year at KSU during his treatment for DIPG. He now starts is final year needed to graduate with a degree in business with prelaw emphasis. Jace loves good friends, good times, and a good debate. He's generally easy going, but man is he stubborn when working towards something. He's going to give cancer a dang good fight!
Jace worked to overcome right side weakness in his walk and fine motor skills, left eye double vision, left facial numbness and the feeling his right leg is always freezing. He endured 30 rounds of radiation and started a clinical trial called ONC201 in September 2019. Jace has traveled often during this year speaking to Congress, the NIH, NCI, at fundraising gala events and on social media to increase awareness of DIPG and to open paths of funding for more research an drug access.
We're a close family. We're his parents, Roger and Lisa Ward. We grew up in Wamego and work in Manhattan. Jace’s brother Blake and wife Lauren Ward live in Overland Park. His sister Brooke Ward is a KSU Cheerleader majoring in Psychology/Business. On behalf of Jace and our familiy, thank you for your prayers, good wishes and support.
What's Next?
We don't know what the future brings, but we DO know WHO holds the future. Jace's tumor is responding to treatment. It has remained stable this year. We are looking for the next treatment in the event ONC201 should no longer be able to hold his tumor. Thank you, thank you for your continued prayers and support. We've got a battle!...but one Jace has shown great resilence to conquer.
We thank the Musella Foundation and the Dragon Masters Foundation for advocating for Jace's care and inclusion in the trial/expanded use. These foundations fund the ONC201 trial and others like them. We must continue to support their work in order for 300-500 young people with DIPG in the US each year to have the chance to live. Jace is giving back to the foundations that fund these trials by helping with a project to advance the awareness of high grade gliomas in young adults. He is sharing his medical information with researchers. He reaches out through fun video chats to kids with DIPG to bring them hope and strength. If you would like to support Jace's expenses or more research -- thank you!
With you, we truly are Tough2gether for Jace. You are amazing!
Our love to you,
Jace and his family
**If you would like a bracelet(s) when donating, kindly comment or send a FB message with your address
Organizer
Lisa M Ward
Organizer
Wamego, KS
