Please read Tylers story.
Tyler is a very happy, caring and goofy 15 year old boy. His strength and courage amaze us every day. He attends school in Bigfork Mt. where they have gone above and beyond in accomodating his needs and saftey with being in a wheelchair.
10 years ago we recieved a diagnoses of Duchenne Muscular Dystrophy for Tyler who was 5 at the time.
Duchenne Muscular Dystrophy (DMD) is the most common fatal genetic disorder. It is caused by the absence of dystrophin which is a protein that helps keep muscle cells intact and undamaged. With the lack of dystrophin muscle cells are easily damaged. This causes progressive muscle weakness and leads to serious medical issues. Particulary to the heart and lungs.
is known to be genetic from the mothers side. In Tylers case he is part of the 35% that are part of a random spontaneous mutation. Although there are treatments that may help slow the progression, there is currently no cure for DMD. It is a life long struggle but with advancement in cardiac and respiratory care life expectancy is increasing.
In August of 2014 Tyler was placed in his automatic wheelchair due to not being able to walk safley anymore. We had to hurry and move as our home was not handicap accesible. With the help of family and friends we were able to find a home, but then came the problem of transporting Tyler and is chair safely.
We drive a handicapped van now, but that van is faulting. Making traveling NOT safe for Tyler.. the ramp will short out, causing it to not drop for Tyler to be able to get into the vehicle. Or the wiring will malfunction, so the ramp will stop functioning not even halfway through being released. Another example is, we will be releasing the ramp and it just suddenly crashes down, without ease or any assist. There will be times even when bringing Tyler up that the ramp will freeze. Leaving Tyler just sitting there waiting for something to go right..
This way of transportation is not safe for Tyler or ourselves.
With Tylers condition comes lots of doctors appointments that we need to travel for so he recieves neccessary care. He sees his very wonderful primary doctor every three months, and attends his drug infusion every Friday. He also has to travel to see his cardiologist, pulmonologist, and orthopedist and travels a couple times a year for MDA visits to Shriners in Spokane Wa.
For more information on Duchenne Muscular Dystrophy please click on link below. https://www.parentprojectmd.org
Please help us in making my brother as comfortable as possible on his journeys.
All I ask is $5 donations, because I know times are hard, and I know in my heart if everyone were to just donate $5 or even just get the word out obout this fundraiser for Tyler, we will get him a new means of Transportation.
The Mischke Family