The fight for Iyla
Donation protected
Hi lovely people, Iyla has an ongoing battle with a rare genetic condition called Wolf Hirschhorn Syndrome. This condition presents in many different severities; from muscular and skeletal deformities to organ abnormalities. Along with being a seizure based syndrome Iyla suffers from physical, mental and developmental delays.
In Iyla's short life she has battled heart failure, chronic lung disease as well as pneumonia and seizures. Iyla has overcome a 5 month admission to a variety of different hospitals and endured cardiac surgery, Hickmann line surgery and recent gastrostomy surgery.
We are raising money to buy Iyla a new pram that can carry the equipment she requires on a daily basis. We are doing this by having a sponsored haircut, auction as well as many other activities.
This is being held at 1600 on the 15th November at the Tavern Pub, 55 Frinton Road, Holland on Sea. It's going to be a great event and all donations are HUGELY appreciated! We hope to see you all there for a lovely day.
In Iyla's short life she has battled heart failure, chronic lung disease as well as pneumonia and seizures. Iyla has overcome a 5 month admission to a variety of different hospitals and endured cardiac surgery, Hickmann line surgery and recent gastrostomy surgery.
We are raising money to buy Iyla a new pram that can carry the equipment she requires on a daily basis. We are doing this by having a sponsored haircut, auction as well as many other activities.
This is being held at 1600 on the 15th November at the Tavern Pub, 55 Frinton Road, Holland on Sea. It's going to be a great event and all donations are HUGELY appreciated! We hope to see you all there for a lovely day.
Organizer
Matt Harvey
Organizer