I STAND WITH CHARLEIGH

This is a new updated Go fund me as the last one was started 6.5 years ago, the funds from the last few weeks will be put towards Brineura doses and Charleigh's on going care.

So there is no confusion on the current actual total.

We didnt want their to be any confusion moving forward,

This GoFundMe has been created to cover the cost of Charleigh’s biweekly treatments that she desperately needs to keep her alive and have quality of life- Your donation will go directly towards giving Charleigh a fighting chance, paying for Brineura infusions and end of life care in the future.

Please donate, share, and help us fight for Charleigh’s future.

Charleigh Pollock is a brave, vibrant and loving 10-year-old girl from Langford, B.C., living with CLN2 Batten disease, a rare, degenerative neurological disorder. She is the only current cln2 diagnosis in all of British Columbia. The only available treatment, Brineura, immensely slows the progression of this fatal disease, keeps her seizure free and full of joy .

It’s not a cure, but it is giving Charleigh more time, more stability, quality of life and more memories with the people who love her.

Despite clear medical need and overwhelming support from global Batten Disease experts and Charleigh's own medical team the B.C. government has made the devastating decision to stop funding Charleigh’s expensive Brineura treatments.

Without this medication, needing to be administered every two weeks, her condition will rapidly deteriorate. This decision has left our family in an unimaginable position, forced to find alternative means to fund Charleigh’s ongoing treatments.

Leading experts have spoken out in support of Charleigh and warns that removing treatment is “akin to a controlled euthanasia”- and without it, Charleigh faces “a horrific death.”

We are beyond grateful for everyone's love and support during this devastating time.

~ Charleigh's loving family