At birth we discovered several complex medical conditions. Congenital heart defects, pulmonary hypertension, cleft soft palate, digeorge syndrome. This was all caused by a deletion of her 22nd chromosome (22q).
Isla underwent her first open heart surgery at 15 days old to make her pulmonary artery/valve larger. Isla struggled with pnuemonias, a collapsed lung, pnuemothorax, staph infections and all kinds of serious complications. In December she was set to go home but suddenly took a turn for the worst. That's when we had her transferred to Houston texas to be at texas childrens hospital. There they discovered MRSA in her lungs as well as several other heart defects that needed repair. Isla had her 2nd open heart surgery in march 2018. She finally came home may 4th at 7mos old. She was doing great and we finally started to see the clouds lifting, but then in June, just a month after coming home, she started requiring more oxygen...and more, and more. She was flown from ft worth back down to houston to her texas childrens hospital, where she still remains. We do not know what is going on this time. The drs are trying to find answers but so far, we have none. There is no discharge date in sight and we are praying hard for answers so we can get our baby girl better. She is now 10mos old and despite all of this, she is the happiest baby ever. She is a true fighter.
We have lost employment and mom travels between Houston and dfw where dad keeps the 2 boys. We are trying to move to Houston so that we can be closer to isla and her medical facility & so that we can all be together as a family again. It's a 4hr drive between us and it's taken its toll.
This gofundme is meant to help with expenses of travel, gas, housing, food etc.
We do not qualify for Ronald McDonald house because isla is not in the ICU, I have tried. We are leaning on God and our community.
Even if you cannot donate, I ask that you please share so that others can read her story as awareness is key in treating our complex children. Please pray for our baby girl and for our family.
You can read about her journey on Facebook "isla the invincible"
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