Hi my name is Ellie Stimson, and I am Isla-Rae’s mother. I am hoping too raise money for hospital transportation too birmigham hospital and accommodation too stay with Isla- rae whilst she has surgery, Isla-Rae is 9 months old and we have recently found out she has been diagnosed with CPAM(Congenital pulmonary Airway malfunction) In other words Isla has large cysts on her right lung that require surgery too be removed. I would like too raise awareness too new coming mothers as this should of been detected as early as 21 weeks however Weve been through a lot too get where we are now and if it wasn’t for my instincts and the constant trips too the hospital we probably would of still been in the dark about Isla’s condition every appointment I attended i made it known Isla was born with a wheeze and no one listened .As early as 2 weeks I took her too her GP because Isla was really wheezy, They told me it’s normal as babies have a lot of mucus when they are born, prescribed Isla some saline drops and i tried these drops and nothing allowed a week or so but she was still wheezy so I took her back too the doctors they said she had a chest infection however was too young for antibiotics and basically too let it go on its own. I allowed a couple of weeks as i thought it eas just a chest infection we take our children too the doctors and just trust what they say, however mums know best around 2 months of age i took Isla striwght up too a&e where they x -rayed her and we were told she has broncholitis and it’s normal in babies and possible larynlglomacia so we finally went home happy with a diagnosis and were told Isla was going too grow out of it. Obviously still concered about her wheeze i took her too the gp where we were blue lighted too the hospital where we were told Isla’s x-ray in may was abnormal and there was shadowing thsi was 2 months after. So they sent her for further too then say it’s broncholitis sent us home with antibiotics and also kept her in as her work of breathing was really bad. Since Isla’s birth Weve been admitted too the hospital 7 times with antibiotics that she never needed, she was sent for numerous blood tests and everytime her blood cell count was down, we went too the hospital so many times and we were just sent home, as a bronchospy was scheduled we were told too wait, this took months where they planned tests Isla was still wheezy and i just knew something wasn’t right, the day before her scheduled bronchospy she fell really poorly again sent with antibiotics. I felt drained and frustrated that my tiny baby wasn’t being prioritised and I felt like the hospital were just fobbing us off and just not listening, on the 6th of November isla had her bronchopsy and ct scan 8 months down the line, The doctor told us Isla couldnt even handle the bronchopsy well and was put on life support and that they had find numerous amounts of cysts, She needed too be put on oxygen and we stayed over this was a very scary time and frustrating as I had told the doctors I knew this was something she was born with and I knew something wasn’t right,this should of been detected in my belly and wasn’t! Every singe doctor I spoke too I stated this is from birth she’s been wheezy since birth but they didn’t listen , Yesterday I had a call from the doctor who diagnosed Isla with cpam and she has got too have surgery in Birmingham.This has caused a lot of stress and anxiety for the family, i Struggle financially and the amount of money I have spent too get to the hospital and food is ridiculous. I just want too raise awareness as there’s no testing for cpam.