On the 27th of August 2018, my 55 year old father (Wayne) suffered a major Basal Ganglia Hemorrhagic Stroke. Before his injury, he was an extremely active high school PDHPE teacher.
We spent 3.5 weeks in ICU, and we are currently still in the ward receiving care. The original prognosis was that he would not survive the original bleed given its severity. He has pulled through, although it is still a long road of rehab and recovery.
We have been told that my dad will require 24 hour care. We had hoped to find a nursing care facility that focused on young acquired and traumatic brain injury (A / TBI) survivors, or even care targeted to younger people that don't fit the mould for 'aged nursing care'.
Stroke does not discriminate, and can occur in any person, of any age - it is the third biggest killer in Australia's and one of the leading causes of disability, with 1 stroke occurring every 9 minutes and 30% of the survivors are under the age of 65 - with many leaving dependant children.*
In recent years, the stroke death rates have dropped significantly - due to medical improvements. This however, has lead to survivors, many with the same disabilities as my dad.*
Stroke aftercare is one of the most expensive there is, given needs of each survivor.
We have been informed that a bond is required for ANY aged care facility which varies between $200,000 - $700,000 plus at least $100 per day - which varies on the care required. None of these costs are covered by health insurance.
We understand that we are not the first, or the last family to have this happen, but we want to create a residential care facility specialising in direct support for young stroke and ABI and TBI survivors or any young person who has been put into the situation of requiring 24 hour support (Multiple Sclerosis, Motor Neurons, Spinal Cord Injury etc). Being cared for around other young people, can provide more mental stimulation and promote rehab, healing and interactions.
This is obviously not something we even thought of before we were in this situation, but we are devastated to hear of the amount of young survivors placed into aged care facilities.
Any donations to get our dream off the ground would be more than appreciated, and we are happy to speak with anyone regarding our journey or where we want to be heading with our dream.
Please feel free to email us on
Colleen (Wayne's Wife), Morgan & Bailey (Wayne's daughters)
Sunday Telegraph: October 28th - Daily Telegraph Link
2GB Alan Jones: November 1st 2018 - Alan Jones Link
A Current Affair: November 15th 2018 - A Current Affair Link
* Information retrieved from: