On 2nd April, Jordan Mossom sadly passed away.
We have decided to raise money for Jigsaw, Cumbria's Children's Hospice, somthing of which Jordan would want to give back to. Jordan has been going to the hospice for over 12 years. We are incredibly grateful for their amazing work and all of the happy memories Jordan has made there.
Jigsaw, Cumbria's Children's Hospice provides one to one care for children and young adults with life-limiting illnesses. Their home from home environment allows the nurses to match the children and young adults home routines as closely as possible, ensuring a smooth, relaxing and peaceful transition between home and hospice environments. During their stay at Jigsaw, they also provide the children and young adults with the opportunity to go on a range of different outings.
Jordan worked extremely hard to raise awareness of his condition, Duchenne Muscular Dystrophy.
Jordan gained a degree in Photography at the University of Cumbria, aged 23. For his final major project, titled 'Daytime Disability', Jordan showed a biographical look at his day-to-day life with Duchenne Muscular Dystrophy. As Jordan said, "the title 'Daytime Disability' makes it sound like I am not disabled at night, in a strange way, it's a bit like those funny once upon a time Little Britain sketches where the character Andy would leap out of the wheelchair when his carer Lou was busy doing something for him."
Jordan was always a positive character and wanted to reassure people with the same condition that life isn't scary.
Jordan said: “Whilst I want to give people an insight into some of the things they may take for granted, I also want to give those who are diagnosed with the condition reassurance that life isn’t scary, to show what happens and what can be achieved.”
Jordan wanted people to know that even living with such a life-threatening illness, a normal life was and is possible.
Jordan said: "I used to hide in the shadows and didn’t want people to know or notice that I live with Duchenne. But after the biographical project about myself and now the Go bright series of portraits, I am definitely not in the shadows anymore. Everyone should be free to embrace their lives, be bright, bold and not hide in the shadows because they have a disability."
Jordan specialised in documentary, transport and landscape photography. He has created several documentary projects, ranging from looking at his own life with DMD and accessibility to people who work on the railways and much more. He has had work published in many railway productions over the years, such as Rail Magazine and Steam Railway magazine to name a few. His works can be found on his personal website: https://www.jordanmossom.com
"I do think photography is part of me. Sometimes it’s like a bit of a release for me to get away from everything to do with my disability, so it’s a form of escapism really." - Jordan Mossom