TAPS Support and Footprints Baby Loss
Last year, our hearts were shattered when we lost our precious twin boys, Tiago and Julian, at just 8 days and 2 months old. They passed away due to Twin-to-Twin Transfusion Syndrome (TTTS) and Twin Anemia Polycythemia Sequence (TAPS)—conditions that were not diagnosed during pregnancy.
Born prematurely at 32+2 weeks via emergency C-section, Tiago and Julian faced numerous medical challenges, made worse by insufficient monitoring throughout the pregnancy. Key MCA and PSV Doppler scans which are vital in high-risk twin pregnancies, were not performed consistently, delaying their diagnosis and vital interventions.
Tiago, our recipient twin, suffered a heart attack just hours after birth, which caused devastating brain damage. He fought for 8 days before passing away. Julian, our donor twin, endured two months of surgeries, transfusions, and relentless fighting before passing away to end-stage liver failure.
In memory of our beautiful boys, we are organizing a family-friendly hike to raise awareness of TTTS and TAPS and to support much-needed research and resources. This event is open to all ages - children and pets are welcome! We invite you to wear yellow or blue in honor of Tiago and Julian.
Event Details:
• Date: 26th July 2025
• Time: To Be Confirmed
• Location: Catbells, Lake District
• Duration: 2-3 hours (family and pet-friendly)
Proceeds will benefit:
• TAPS Support: Funding research, advocacy, and resources for families facing the challenges of TAPS.
• Footprints Baby Loss: Providing support for families grieving the loss of multiples and working to improve bereavement care.
By joining us in this hike, you’ll help raise awareness of TTTS and TAPS, honor the memory of Tiago and Julian, and support families navigating similar heartbreaking experiences.
If you are unable to join us for the hike, please consider making a donation to support these critical causes.
We are forever grateful for your love, your support.
To learn more about their condition and the incredible work done by TAPS Support Foundation and Footprints Baby Loss, please visit the following links:
• TAPS Support:
https://www.stichtingtapssupport.com
• Footprints Baby Loss
https://footprintsbabyloss.org/
Thank you