In honor of Lilly and Riley Waeghe

Update: Sadly, on February 13th, Lilly gained her wings in the early morning. The funds will now be going towards funeral costs. The family wants to thank each and everyone who has donated and continues to donate! They appreciate it and all the support from everyone! 

Riley has now been diagnosed with Alper’s Syndrome as well. This money will be going towards a handicap accessible van for the girls! Lilly needs to be positioned a certain way as she is struggling to breathe on her own as it is! A handicap accessible van will ensure for safe and comfortable travels for Lilly and Riley! 

Thank you all for your continued support and love!  We appreciate you all more than we can express!! 

Lilly was diagnosed with Alper’s syndrome April 14th. Riley now has the same brain activity that Lilly did when this awful disease started for her. Both of these girls are the strongest, bravest, most loving little kids I have ever met! This is devistating to everyone! Please help support their family during this very difficult time while fighting this horrible disease for both of these girls! ❤️
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Jacquelyn LeBerth
Marion, NY

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