Improving our daughters quality of life.

My daughter was born, very sadly, with multiple genetic abnormalities. We are working with many, and I mean many, doctors to figure out all the details. Let's just say that she is a rare case of rare... she is currently 8 years old and for the last 7 my wife and I wondered if she would make it to adulthood or not. She has had her genetics sent to Helsinki and had so many other tests I fear that she may have been permanently traumatized. For the last 7 years I have worked myself to the bone working 2 jobs trying to keep this family going. With Covid-19 I've lost all my main sources of income... I need your help to help my daughter, son and wife. My daughter needs therapies which the government would help support but the fundings are going to places which can't help due to covid... Please, I know this time is hard for you, I and everyone in the world but anything would help.

As I know people will ask here are some finer details...

Juvenile Neuropathy, NLGL3 gene mutation (autistic, epilepsy, low tone, & global developmental delay), PKP2 gene mutation (AVRC heart condition), hEDS, FSHD, Failure to thrive, Intellectual deficit, Arthralgias fatigue and Visceral pain, Hyper-mobility, Chronic joint stiffness...